I am a mom of an 10 year old boy with fragile x. He has changed my life in so many ways and my life would not be the same without him. We have our challenging days but at the end of the day he is sweet and amazing. I am a better person because of him and his disability. I want parents of kids with disabilities to know it's just a bump in the road, it does'nt mean that a diagnosis has to define your child. Every child can grow and do great things. A Genetic Doc and UC Davis once told me " Maybe he wont be a lawyer or a doc and maybe he wont do great accademically but he will find something he loves and grow up and support himself." She told me to be proud of the things he can do and embrace each little moment. I refuse to sit at home with my son and feel bad. I want Kolt to experience the world even if it's a challenge sometimes. Please support this great cause to help families affected by fragile x all over the world.
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