Renae Henderson wrote -
On January 2, 2013 at 30 years old, I was diagnosed with epithelioid sarcoma (ES) - a rare and aggressive soft tissue sarcoma cancer most often found in young adults. To be diagnosed with something that hardly anyone has ever heard of (including doctors) is both terrifying and frustrating. People often can't understand how cancer in your finger can be so dangerous making the experience all the more isolating.
I will be climbing to the summit of Mt. St. Helen's on August 6, 2013 to help raise money for all sarcoma cancer research. In addition to raising money that will help fund research for treatments and causes, my climb is also to honor all of those who have lost their battle with ES or are currently fighting. Please sponsor me or consider joining me and share this page to help increase awareness! The money will go directly to the Sarcoma Foundation of America. For more information on SFA, visit: http://www.curesarcoma.org/.
A few facts about sarcomas from SFA and why we need your help:
- Sarcoma is sometimes curable by surgery (about 20% of the time), or by surgery with chemotherapy and/or radiation (30%), but about 50% of the time they are totally resistant to all of these approaches — thus the extreme need for new therapeutic approaches
- The most frequent location is the limbs since this is where the majority of the body’s connective tissue resides. They are commonly hidden deep in the body, so sarcoma is often diagnosed when it has already become too large to expect a hope of being cured
- Approximately 50,000 patients and their families are struggling with sarcoma. About 12,000 new cases are diagnosed each year and about 5,000 people die each year from sarcoma
- Sarcoma is a rare cancer in adults (1% of all adult cancers), but rather prevalent in children (about 15% of all childhood cancers)
The majority with epithelioid sarcoma initially or eventually experience radical tissue removal (surgery is the most effective treatment to date) that often means amputation of fingers, toes, hands, feet, arms, and legs. It has a very high rate of recurrence and most commonly spreads to the lungs or lymph nodes (although it can spread elsewhere too). There isn't a lot of information on ES, but for a little more, please visit: