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Save baby ofentse

Organized by: Tshepo Morupane

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This is baby ofentse
October 03, 2016

THE STORY:

I dont know why my family has to suffer like this.two months ago a baby boy was born, in a loving and caring family . only to find out he wasnt healthy, when we took him to the hospital  doctors looked at him and  took him for some testing, results came back only to find out he has this rare disease called krabbe. Krabbe is a disease mostly in newborns  which affects the nervous system and its caused by shortage of enzymes. It is   difficult to diagnose, variable in its natural history, and does not always respond to treatment. The only available treatment is hematopoetic stem cell transplantation, which is expensive, risky, but its our only hope to saver my little brother . The disease is rare but devastating, the screening program is costly, the natural history of the disease is not well understood, and the only available treatment. hematopeotic stem cell transplantation and its  expensive and risky. Both my parents are devastated, my father tried applying for a loan but only to find out he doesn't qualify for a loan of about $100 000 . Doctors insust that they wont help my brother without the funds . I cant stand a watch my family go through this.  Ive never seen both my parents this hurt and helpless.  Thats why i came here and beg for you guys to help me. I cant just sit and not do something while i lose my family like this. Please help me.

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Organized by

Tshepo Morupane

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