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Peter and Kelly Weishaar's Fundraiser:

Save Me from MPSIII

Peter and Kelly's Photo
Peter and Kelly's Photo
Peter and Kelly's Photo
Peter and Kelly's Photo
Peter and Kelly's Photo
Peter and Kelly's Photo
Peter and Kelly's Photo
Peter and Kelly's Photo
Peter and Kelly's Photo
Peter and Kelly's Photo
 

Cousin Jonah
November 26, 2016

Our children love their cousin Jonah.  He lives in Brooklyn, so we don't see him as much as we would like to.  But, when we do, it's always  See more
Peter and Kelly Weishaar

THE STORY:

Our children love their cousin Jonah.  He lives in Brooklyn, so we don't see him as much as we would like to.  But, when we do, it's always fun.  

Jonah was diagnosed with Sanfilippo Syndrome, a rare genetic disease that presently has no cure.  But there is hope.  Jonah's parents, Jeremy Weishaar and Jill Wood have worked tirelessly through a foundation they created (Jonah's Just Begun--Foundation to Cure Sanfilippo, Inc.) to raise both funds and awareness of this rare disease, and a treatment may be on the horizon.  But, they need our help.  That's why we've created this page to join their Crowdrise team and their latest fundraising campaign, which runs from now until January 5, 2017.  Please consider making a gift today.  Jonah's Just Begun is registered with the IRS as a 501(c)(3) public charity.

JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN wrote -

Jonah's Just Begun is a 501(c)(3) dedicated to the research and development of life-saving treatments for MPSIIIC & D, but you probably already knew that.  Starting with the hope of saving their son's life, Jonah's parents have taken MPSIII C & D research to places they only dreamed about.  FYI, MPSIII is also known as Sanfilippo Syndrome and if you want to get technical MPS is short for mucopolysaccharidosis. http://jonahsjustbegun.org/what-is-sanfilippo/

Because we are a mom and pop (literally) non-profit organization, we rely on the generosity of our supporters to keep the research going.

Funding from our supporters have contributed to three potential treatments!  Our gene therapy drug is nearing clinical trial- you can help us get there!  Please consider donating and share our page.

If you want to go the extra mile, become a fundraiser yourself!  Just hit that 'FUNDRAISE FOR THIS CAMPAIGN' button off to the side, then hit 'JOIN THE TEAM'.  

Your donation is always much appreciated and gives the gift of life, but a fundraiser would make us stand up and boogie down!  Don't you want to see Jonah's boogie dance?!  If we get 10 fundraisers on our team we will post a video of us doing just that.

DONATE

To This Fundraiser

$200

MONEY RAISED
  • Peter and Kelly Weishaar

    $100

  • Amy Varel

    $100

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The Team: $51,296 TOTAL RAISED SO FAR

Fundraiser Title

JONAHS JUST BEGUN-FOUNDATION TO CUR...

Amount Raised

$33,920

 

34% Raised of $100,000 Goal

Fundraiser Title

Sanfilippo Brasil

Amount Raised

$4,325

Fundraiser Title

J W

Amount Raised

$3,610

 

18% Raised of $20,000 Goal

Fundraiser Title

Jonny Lee Miller Fans Unite For Jon...

Amount Raised

$2,005

 

100% Raised of $2,000 Goal

Fundraiser Title

Jeremy Weishaar

Amount Raised

$1,725

Fundraiser Title

Vanessa Hoffman

Amount Raised

$950

Fundraiser Title

Jennifer Wood-Mercier

Amount Raised

$775

 

0% Raised of $2,147,483,647 Goal

Fundraiser Title

Peter Weishaar

Amount Raised

$750

Donor Comments

Amy Varel

Amy Varel

DONATION: $100

2 years ago

Peter and Kelly Weishaar

Peter and Kelly Weishaar

DONATION: $100

2 years ago