Save a Post Traumatic Eplipsey patient
Organized by: Gerald Mupaghasi
It’s now 18 years since Zerina(victim) met a motor accident which deprived her. May 9, 1997 on that fateful day, at the end of first term in her fifth grade, while travelling to western Uganda, as the bus which she boarded hit a truck that had parked along the road. The bus overturned causing severe damage Zerina’s skull with a fracture (from forehead to the nostrils); her left thighbone got a fracture! She was then transferred to Mulago referral hospital in Kampala for further examination of the frontal lobe fracture after two nights in Ishaka hospital. In Mulago hospital she stayed there for two-and-a half months under intensive care. A year later, the neuro-surgeon performed a cranial plastic surgery because the forehead was palpating alongside the heartbeat. A year later, Zerina started getting seizures/convulsions which was managed by different anti-convulsing drugs that the specialists kept on changing and adjusting due to the intensity of the seizures and hallucinations. Zerina tried to catch up with school but completely halted after she reached S.2 (in 2002). By that time the frequency of seizures had increased. Besides, some of the drugs (phenytoin) caused her gums to overgrow. In October 2009, Zerina got so weak due to frequent seizures and was rushed to Mengo hospital where she was unconscious for two weeks and there after transferred to Mulago Hospital. Since May 2013 she has been in and out of health centres due to the severity of her convulsions. Furthermore, she has difficulty in intravenous admissions – her veins are almost impossible to find whenever the nurses want to fix drips of fluids and medications! Zerina’s health has deteriorated so much so that she does nothing without help. Things like standing are no longer possible; she has no balance. Because of this, everything is done with a helping hand, even feeding her. She makes no movements of her own – she is carried around even for movements from her bedroom to the living room, she does not make any requests for food even when she is hungry. Apart from losing balance, her limbs sometimes are slow; her left leg is feeble. This is the kind of life we are going through – we are not in hospital; we are at home. I feel that something can be done to correct this lack of balance. Although she has been sick for eighteen years, the walking has totally failed in the recent period of two years. We feel there hope for her to walk by herself again, hope that she can do her chores as she used to do and even going back to school We appeal to all out there for financial assistance to help Zerina access international neurologists to put an end to her predicament, as per the medical and all the related bills cost amounting to USD20000.