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Andrew Kim's Fundraiser:

Saving Sophie

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BENEFITING: CURE CMD

Andrew Kim

THE STORY:

They say that the worst thing in life is for a parent to outlive their child. As much joy as our daughter Sophie brings to all of us, there isn’t a day that goes by that we and other parents of kids with CMD don’t think about that. But there’s not a chance in the world that we are going to let that happen without doing everything we can to prevent it. Unfortunately we can’t do it alone - we need your help. We cannot express in words how much we appreciate any support that you can give.

At the age of 2, Sophie was diagnosed with a rare genetic disorder called Ullrich, a form of Congenital Muscular Dystrophy, or CMD, which is a group of neuromuscular disorders that currently have no cure or treatment. Children with CMD are born with serious muscle weakness, and their muscles break down faster than they can repair or grow. Some children never walk. Some children, like Sophie, can walk early in life but lose that ability over time. Sophie lost the ability to walk when she was 4. Worse, the daily race of life becomes more exhausting and demanding as this progressive disease continues to weaken their already frail bodies.

But this can all change with breakthroughs in medical research. That’s why on October 5, 2014, we are running the San Jose Rock N’ Roll Half Marathon & 10K to raise money to find treatments for congenital muscular dystrophy, spread awareness about the disease and ultimately to hopefully save the lives of children affected by these diseases.

Sophie is an amazing little girl who just turned 8. She loves pop music (everything from Iggy Azalea to Ellie Golding), the Disney Channel (Ant Farm and Austin and Ally), dressing up and doing her nails, eating Japanese food and Krispy Kreme donuts, reading books like Wimpy Kid and the Land of Stories, complaining about her pesky little brother and hugging him and kissing him when she's not, and putting her hot pink wheelchair on high and gunning it as fast as possible. But although she never complains about her condition, you can tell sometimes by looking at her eyes that when she watches other kids, she wants to walk again, and run, jump in the bouncy house, swim in the pool, and dance to all her favorite songs.

So for one day, all these things that she cannot do, which we take for granted, we are going to do for her, in the hope that with your help, maybe one day Sophie, and all the other kids with CMD, will be able to walk and run on their own, if not for a half marathon, then maybe just far enough to chase that butterfly, or race that puppy.

All proceeds from the run will go to CureCMD, a 501(c)(3) non-profit organization that was founded just 6 years ago to raise awareness and fund research for CMD, and all amounts raised will go directly to fund research. Therefore if you are able, we would greatly appreciate your support through an online charitable donation. There is no minimum donation, and any amount you can provide will go a long way towards helping to find a cure for kids like Sophie. Your donation is 100% tax deductible. And please encourage a friend, relative, neighbor, or co-worker to support the organization by donating as well. If you’re on Facebook, LinkedIn or Twitter, please feel free to spread the word.  Thank you for taking the time to listen and thank you all from the bottom of our hearts.

 

DONATE

To This Fundraiser

$159,625

MONEY RAISED
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  • Michelle and Greg

    $100

  • Jessica and Alicia

    $15

  • The Moose Family

    $100

  • Azimah

    $50

  • Julie Myers

    $50

  • Ant & Al Shaw

    $100

  • Jung & Shinja Mo

    $100

  • Jill St. Sauveur

    $25

  • Diana and Gareth Evans

    $250

  • Julianna & James Roh

    $100

  • A&M Stulbarg

    $50

  • The Braun Family

    $100

  • Alan & Laura Woolery

    $500

  • Mike & Wendy

    $200

  • Lawrence Oh

    $100

  • Anonymous

    $100

  • Amanda P.

    $20

  • Anonymous

    $500

  • Anonymous

     

  • Erin Guo

    $30

  • Anonymous

    $100

  • Anonymous

     

  • Jen & Jim

    $200

  • Claude Stern

    $100

  • Anonymous

    $100

  • Geraldine Conlon

    $50

  • Blessie

    $100

  • Greg Ise

    $50

  • Nhut Truong

    $50

  • Tsao family

    $25

  • Homan Staudt Family

    $25

  • Anonymous

    $200

  • Jasmine Gong

    $50

  • Dan Turbow

    $150

  • Kristi Gilbaugh

    $50

  • Chemi and Joe Lo

    $100

  • Jason Lang

    $50

  • Anonymous

    $450

  • Christine Xia

     

  • Jackie Gu

    $35

  • Kenichi Amaki and Moon Jung Chung

    $50

  • The Clarke Family

    $75

  • Bok Soon Kim

    $100

  • Gaby & Shin

    $100

  • Hsu Family

    $100

  • Patrick and Emily Lo

    $500

  • Patrick and Emily Lo

    $1,000

  • old friend

    $100

  • Chavan Family

    $100

  • Anonymous

    $50

  • Denise Lee

    $100

  • Cathy Kim & Matt Kelly

    $50

  • Max and Ian

    $50

  • Anonymous

    $50

  • Stuart Levi

    $100

  • Terri

    $20

  • Janie Lee

    $25

  • Cheryl Spina

    $100

  • AiMinh & Rick

    $100

  • Christa Sanford

    $50

  • Anonymous

    $40

  • Patrick and Jean McGee

    $100

  • Anonymous

    $75

  • Regan Family

    $250

  • Irvine Nguyen

    $50

  • Lindsay

     

  • Anonymous

    $100

  • Kevin and Lusi Chien

    $50

  • Becky and Michael Geller

    $50

  • Anonymous

    $40

  • Will and Frances Mosley

    $75

  • Teresa

    $10

  • The Kleins

    $50

  • Mike Tian

    $100

  • Sanjay and Nicole Kumar

    $250

  • Anonymous

    $100

  • Anonymous

    $100

  • Karina O'Sullivan

    $150

  • Dr. & Mrs. Hsin

    $600

  • Anonymous

    $150

  • Pistacchi Family

    $100

  • Dan Paik

    $50

  • Anonymous

    $25

  • Suken and Nidhi Shah

    $50

  • Errol Buxton

    $250

  • Dave, Jen, Tyler and Tristan Adams

    $100

  • The Shimanos

    $50

  • David L Ruff

    $100

  • Muthu

    $100

  • Krissy and Jared

    $100

  • Mindy

    $250

  • Catharina Min and Johnn /fish

    $500

  • Andrew Portsmouth Layton

    $150

  • Navaid Alam

    $100

  • Anonymous

     

  • Thai T Tran

    $50

  • Anonymous

    $100

  • thomas pak

    $250

  • Hue

    $100

  • Jamie & Beth DiBoise

     

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160% Raised of $100,000 Goal

Fundraise for this Campaign

The Team: $159,625 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Andrew Kim

Amount Raised

$42,841

 

43% Raised of $100,000 Goal

Fundraiser Title

P.J. Gunsagar

Amount Raised

$16,020

Fundraiser Title

Team Phillips

Amount Raised

$12,000

Fundraiser Title

Mark Liu

Amount Raised

$9,035

Fundraiser Title

Joyce & Bobby

Amount Raised

$8,510

Fundraiser Title

Hogene Choi

Amount Raised

$4,290

Fundraiser Title

Dong Choi

Amount Raised

$3,675

Fundraiser Title

Wylea Kirkpatrick

Amount Raised

$3,500

Donor Comments

Jamie & Beth DiBoise

Jamie & Beth DiBoise

Let's Help Save Sophie 3 years ago

Hue

Hue

DONATION: $100

3 years ago

thomas pak

thomas pak

DONATION: $250

4 years ago

Anonymous

ANONYMOUS

DONATION: $100

4 years ago

Thai T Tran

Thai T Tran

DONATION: $50

4 years ago

Anonymous

ANONYMOUS

for sophie and all kids with CMD 4 years ago

Navaid Alam

Navaid Alam

DONATION: $100

Go Sophie. 4 years ago

Andrew Portsmouth Layton

Andrew Portsmouth Layton

DONATION: $150

4 years ago

Catharina Min and Johnn /fish

Catharina Min and Johnn /fish

DONATION: $500

4 years ago

Mindy

Mindy

DONATION: $250

4 years ago