Sawyer Strong Smile Fund
Organized by: Samantha Meyers
What will the donations be used for right now? Let me tell you...
September 05, 2016
Sam & Brittany want to teach, show, and explore as much of the world as they possibly can while Sawyer is still mobile and cognitively developing. There will come a time when all they can do is strive to keep her alive. Right now, they want to see her thrive. These donations will go towards anything that'll make her smile. These funds will help with things such as a new and safer car seat, eventually an iPad, it'll help fund trips to the museums, water parks (she loves water), day trips, overnight trips, trips to visit other Sanfilippo kiddo's all over the U.S, and you can't forget her favorite: ice cream trips. This will allow Sam & Brittany to be able to give generously to her without worrying about financial stress on top of everything else. Please follow their journey as they update the comings and goings of the sweet Sawyer thanks to your generousity. Please follow along and share their story!
Here's Sawyer's story:
As most of you know Sawyer’s health has been a mystery since birth. Her respiratory issues have been ongoing and fighting for answers has been nothing short of exhausting for Brittany and Sam. This little girl has been through the ringer with countless doctor appointments, procedures and tests. She will NOT go down without a fight and neither will we!
On June 14, 2016 Sawyer was diagnosed with MPS III Type A- Sanfilippo Syndrome. This is a genetic disorder that 1-70,000 babies are born with. This disease is incurable and absolutely heartbreaking.
Imagine Alzheimer’s, but in children...
In a nutshell, that’s what every family of children with Sanfilippo faces. The result has grave health consequences with life expectancy in the early teens, sometimes less. It is a degenerative condition wherein the body and mind begin failing at varying stages and speed. Gradually a child will lose the capacity for speech, walking, swallowing, and ultimately the loss of vital organ functions. Often speech is the first thing to go, and many times around the age of 6. There is no cure. It is a parent’s worst nightmare and an unfair sentence for any innocent child.
This family has so many unknowns ahead of them. I ask you to please rally around them during this difficult journey ahead. They NEED you and your support! PLEASE share their story.
Thank you from the bottom of our hearts!
**For everyone that donates, please comment with your name and address on this page. We have designed "Sawyer Strong" bracelets that we would love to have you wear to help spread awareness for our sweet girl. **