BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
ORGANIZER: Cornelia de Lange Syndrome Foundation, Inc.
EVENT DATE: Aug 06, 2016
Thank you for visiting our fundraising page!
It has been over 2 years now since the birth and passing of our daughter, Layla, who was born with a rare genetic condition: Cornelia de Lange Syndrome. Over the past two years we have come to find comfort and support from the Cornelia de Lange Syndrome Foundation family. Our goal is to continue to support the Foundation for years to come so that they may continue to provide support, services, programs and information for families affected by this syndrome.
This year we will be participating as "Team CdLS" in the August 6th Sea Isle City 10 mile island beach run, our most challenging event yet. Our training is currently underway and the miles are increasing by the week. We will be running in memory of Layla and fundraising to support the Cornelia de Lange Syndrome Foundation whose mission is to reach out, provide help and give hope to the families affected by this syndrome.
We would like to thank you for your support in helping to keep Layla in our hearts and providing assistance to other families affected by this syndrome, through the CdLS foundation. You can learn more about CdLS here: www.cdlsusa.org
Shawn & Kim