Skip to content

Sean Daley

Royalty Crests
Comments

To leave a comment Login or Signup

Monica
Monica SAYS:
Dear family and friends, A…
Dear family and friends,

As you all may know, our son Nicolas is affected by Fragile X Syndrome. For those of you who are not very familiar with Fragile X Syndrome, FXS is the most common cause of inherited intellectual disability and the most common known genetic cause of autism or autism spectrum disorders. It can cause learning and behavioral challenges ranging from mild to severe.

As exciting as Nico’s progress has been, so much more needs to be accomplished. Research for Fragile X is incredibly promising. It is a single gene disorder and science has already identified the exact protein (FMRP-1) that is responsible for the cognitive impairment. With science on the cusp of exciting breakthroughs in Fragile X, we feel compelled to continue this Walk every year until treatments and perhaps even a cure is found. We believe that one-day, thanks to the generous support of our loving family, good friends, and kind individuals, science and medicine will make this possible.

We are back again this year asking for your support on this cause so near and dear to our hearts. We are hosting our third Annual Fragile X Walk with our dear families of Northern Virginia. As a group, we nearly reached our goal of $50,000 last year and are determined to reach it this year. But for that we need your help.

The date is May 17th and the venue the beautiful Burke Lake Park. The distance of the walk will be only one mile but we promise it will be a fun filled morning, with food and entertainment for kids of all ages.

To register follow this link (https://www.crowdrise.com/monicapena-FXSNOVA2015/fundraiser/monicapena) and sign up. If you are unable to be at the walk consider making a donation. Every little bit helps to help us reach our ultimate goal: find a cure for Fragile X Syndrome.

http://www.fragilex.org/
3 years ago
see more  
Monica
Monica SAYS:
Dear Sean and Augustine, Th…
Dear Sean and Augustine,
Thank you so much for most generous contribution. Your support means a lot to us and to the future of kids like Nicolas.
Hope to see you at the walk. It is going to be a lot of fun.
Diego and Monica
4 years ago
see more  
Sean Daley
Burke, VA United States
CROWDRISING SINCE: May 05, 2014
Stuff About Me:
The person who created this page is probably preparing something riveting to post about everything they're doing to give back. We recommend you sit at your computer and hit refresh over and over until their story goes live. You should also scroll down and see if they have a fundraiser going so you can support 'em.

Sean
Daley

VOTE

CR Impact Points

Click the VOTE button to give Sean 100 CrowdRise Impact Points (CIPs). Vote for the Volunteers and Fundraisers that are answering the call to service, raising money for charity, and making an impact for their causes. Come back and Vote every months. CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.

CR Impact Points

If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for Sean this month. Come back next month and vote again if you still love Sean. Thanks to your vote, Sean earned 100 CrowdRise Impact Points (CIPs). CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.

2,450

Total Impact Points

Sean Daley's Fundraisers

Nico's 2014 Team

Nico's 2014 Team

Amount Raised:

$0