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Sean Losier

Sean Losier
Medford , MA United States
CROWDRISING SINCE: Jan 12, 2014
Stuff About Me:

On Monday, April 21st I will be running my second Boston Marathon.  Together with my brother Mike, we are running in support of Neurofibromatosis (NF), Ryan Feeney and the Feeney Family.  The Mission of NF Northeast is to find a treatment and cure for NF by promoting scientific research, creating awareness, and supporting those who are affected by NF.

Ryan Feeney was diagnosed with Neurofibromatosis (NF) at 4 months old. NF is a genetic condition that causes tumors to grow anywhere in or on the body. While the tumors are typically benign, they may be of concern if their location means they are pinching a nerve or interfering with other parts of the body. In addition to the growth of tumors, a small percentage of people with NF can develop tibial dysplasia. Tibial dysplasia is the excessive bowing or curvature of the long bones. Ryan was diagnosed with this condition. As a result of this, Ryan has had several major surgeries, including the amputation of his right leg.

I have known the Feeney family since I was a young boy, growing up a few streets over.  I have always looked up to Shawn and admired his toughness, strength, and perseverance; characteristics that were obviously passed on to Ryan. Ryan hasn’t let the loss of this leg stop him from being a kid and enjoying activities with family and friends.  He has thrived with his prosthetic leg...walking, running and even skiing!

My fund-raising goal has been set at $5,000. I hope that you will join me in supporting Ryan, his family and raising awareness for NF.  

Please click on the link below and view my fundraising page if you wish to donate to this cause.  No donation is too small, every little bit helps towards the goal.  The NF Northeast team and I thank you in advance for your support and generosity.  

 

Sean
Losier

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Sean Losier's Fundraisers

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