BENEFITING: Children's Cardiomyopathy Foundation, Inc.
EVENT DATE: Jan 14, 2017
I am organizing the Second Annual Chad’s Race for the Cure. This is a fundraiser for the Children's Cardiomyopathy Foundation (CCF), a national, non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle. (The disease affects 30,000 children, and in the most severe cases, can cause heart failure and death. For example, hypertrophic cardiomyopathy is the most common cause of sudden death in athletes.)
CCF is an organization that means a lot to me and my wife, Michelle. In 1999, at the age of thirty, physicians diagnosed me with hypertrophic cardiomyopathy. In February 2003 I had a defibrillator and pacemaker implanted. With my physicians' guidance and support from Michelle and our family, I have been able to remain physically active and healthy.
For the Second Annual Chad’s Race for the Cure, I will be training for and participating in the the January 14, 2017 GORUCK Light Challenge in Washington, D.C. GORUCK is a company founded by former Special Forces member Jason McCarthy. GORUCK has a series of Challenges around the country that involve individuals working together as a team as they ruck (carrying a weighted rucksack or backpack) and participate in a series physical and mental challenges. (The event is not a race, but a team building endeavor.) A Challenge Cadre (someone with a background in Special Operations) leads the team through the adventure and series of challenges.
The GORUCK Light Challenge is FOUR TO FIVE HOURS LONG AND COVERS SEVEN TO TEN MILES. (Caps added for emphasis and dramatic effect.)
I am very fortunate that I not only have support from friends and family, but also access to some of the best physicians in the country. Unfortunately, too many children and their families do not have the same. CCF works closely with physicians and families to improve the diagnosis, treatment, and quality of life for children affected with this condition. Your contribution to CCF will help children get the medical care they deserve and expand the search for a cure.
I know from personal experience that being diagnosed with cardiomyopathy can cause an instant crisis in a family. For too many parents with children diagnosed with pediatric cardiomyopathy, this fear and anxiety is followed by concern for voluminous medical bills. With your contribution and this fundraising effort, it is my hope that no child or family will experience what my family and I have gone through since my diagnosis.
With your kindness and donations, we can assist CCF’s efforts to make a difference in children’s lives and fund research to find a cure. I thank you for your generosity.