Maggie was diagnosed with T1D over two years ago, at the age of eight. The most common advice we were given was that we find her a dia-buddy right away. But our new life with diabetes (and celiac's) was crazy, so we hunkered down to put a lot of effort into showing Maggie that while life will carry a lot more details, the core of who she is does not have to change. We wanted her current friends to have a chance to love and support her, and they did. Our people were wonderful! But now it's time for her to expand her relationships so that she can experience the "Aha!" and the "You too!" that comes with sharing similar burdens. We are looking forward to Maggie making dia-buddies.
Diabetes and Celiac's are diseases from which there is no break. You must take your insulin. You must calculate everything you eat. You can't freely share in a potluck. You must change your pump site every three days, even if the change day falls on your birthday. These restrictions mostly affect the person who has diabetes and celiac's, but they impact the whole family. No gluten is allowed in our house. The other children don't eat food that spikes her blood sugar. If we are hungry while we are out and about, there is no stopping at the drive-through. And, in no uncertain terms, in some way, we lose important sleep.
ConnecT1D Family Camps will be the most restful and true-est vacation our family will ever experience. It is run by people who have opened up the story of our lives and cast themselves as the hero who is able to offer rest, safety, fun, relaxation, fellowship in a way that meets the unique needs of a family with diabetes and celiac's.
Our family has been given a full scholarship, which has a $2,000 value. Our goal is to raise $2,000 to replenish the funds for another large family to have this experience next year.