send a special needs child to camp
Organized by: Julie Folland
Hello,I have a daughter with FAS (Fetal Alcohol Syndrome), which is a hugely misunderstood & INVISIBLE disability that affects numerous areas of the brain, including the capacity to filter out the Stimulus in the everyday world. Because of my drinking during pregnancy (I didn’t know I was pregnant until her 16th week of growth), these are just some of the difficulties she faces every day! she has many Sensory issues (sensitivities to textures, smells, lights, & noises), that can easily overwhelm her, and occasionally cause her to exhibit (what many people mistake for) “Bad” behaviours.
FAS also causes complications with her Fine & Gross Motor Skills. she has a few mental health diagnoses, for which medications (as well as their side effects); disturb her ability to live a “typical” life. In addition to all of the above, she has Tourette’s and most of her Tics embarrass her, she just want to be a regular teenager!
her wish is to go to a Tourette’s camp in Ingleside Illinois so she can find people like her with Tourette’s. All of the proceeds will go towards the travel costs and spending money for her at Tourette’s camp
Lindsay is a vibrant, kind, intelligent, helpful young girl that wants to lead a “normal” life.
Although the Tics from her Tourette can be somewhat managed with medication, there is no cure.
It has a huge impact in her social capacities, as Society is not able to see her as a disabled individual, but as an ignorant teen, (she mimics what people say, sometimes swears out loud, makes strange chirping sounds, as well as having strange facial and body twitches etc.).
She has researched and found a camp for children and teens with Tourette’s and they have agreed to sponsor her the camp fee, but she is required to pay the travel expenses and as a single mother on disability myself, I am unable to come up with the flight and associated costs (it is located in the Chicago, Illinois area, USA).
This is a once in a lifetime opportunity as the camp will teach her some valuable skills in managing her symptoms, help to educate her in her prognosis, and help her to feel “normal” for once in her life, and help her to achieve a healthy positive future. I am sure you know how difficult being a teen is nowadays, let alone one who has a greatly misunderstood disability.
Lindsay is always helping others, and even though life hasn’t given her the best hand she does her best to keep playing. We moved to Nanaimo (from Vancouver) so that she could attend a specialized school, so any of her supports were lost, when we moved.
Lindsay has many positive qualities to offer her Community and Society but requires understanding and support to help her achieve these goals.
This camp has many benefits for Lindsay, and her future and any assistance you can offer would be amazing