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Emma Grace MacNiven's Fundraiser:

September 14, 2013 Twin To Twin Transfusion Syndrome Fundraising Day for Dr. Julian DeLia’s Pioneeri

Emma Grace's Photo
Emma Grace's Photo
Emma Grace's Photo
Emma Grace's Photo
Emma Grace's Photo

Emma Grace MacNiven via Crowdrise
September 07, 2013

TTTS Fundraiser - Emma Grace MacNiven - thank you for all donations thus far.  See more


EVENT DATE: Sep 14, 2013

Emma Grace MacNiven


Pewee Valley, Kentucky: Emma Grace MacNiven, a 6th grade student is collecting tax deductible donations to raise funds for TTTS research and education for the Medical College of Wisconsin’s Dr. Julian DeLia. Ms. Emma MacNiven lost her twin brothers, Joseph and Jonathan on November 21, 1989 and is having her Eleventh birthday party in honor of Dr. DeLia and to raise funds for TTTS program.

This fundraising day plans to raise donations for Dr. DeLia’s pioneering laser surgery to correct the condition in identical twins called twin to twin transfusion syndrome. Please start collecting funds today and bring them to him personally. In addition, a welcome reunion for the southern region of parents who lost twin(s), twin survivors, parents, friends and healthcare professionals who would like to visit with Dr. DeLia, share stories of hope, survival, courage and learn more about the pioneering laser surgery on identical twins. Donations are tax deductible and made out to Medical College of Wisconsin Twin to Twin Transfusion Syndrome Program.

TTTS has serious consequences for each twin. The complications of TTTS arise due to the presence of placental anastomoses, unbalanced placental sharing, preterm labor, or a variable combination of all of these factors. If TTTS is detected in the first 20 weeks of pregnancy is left untreated, there is a 70-100% chance that the twins will not survive. Ultrasound detection is key.

Following the Reunion with Dr. DeLia at 7pm Emma is having her friends in for a Hawaiian Luau Birthday Party and asking her friends for a donation in lieu of a birthday present.

Tax Exemption Information: Medical College of Wisconsin Twin to Twin Transfusion Syndrome Program Tax ID# 39-0806261


To This Fundraiser


  • Emma Grace MacNiven


  • Emma MacNiven


  • Jerry L Canterbury



2% Raised of $5,000 Goal

Fundraise for this Campaign



Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Jerry L Canterbury

Jerry L Canterbury


In honor of Emma's mother Jill. 5 years ago

Emma MacNiven

Emma MacNiven


In honor and memory of my twin brothers Joseph and Jonathan Elliott 11/21/89 5 years ago

Emma Grace MacNiven

Emma Grace MacNiven


In honor and memory of my twin brothers Joseph and Jonathan Elliott 11/21/89, and dedicated to Dr. DeLia 5 years ago