Emma Grace MacNiven via Crowdrise
September 07, 2013
BENEFITING: MEDICAL COLLEGE OF WISCONSIN INC
EVENT DATE: Sep 14, 2013
Pewee Valley, Kentucky: Emma Grace MacNiven, a 6th grade student is collecting tax deductible donations to raise funds for TTTS research and education for the Medical College of Wisconsin’s Dr. Julian DeLia. Ms. Emma MacNiven lost her twin brothers, Joseph and Jonathan on November 21, 1989 and is having her Eleventh birthday party in honor of Dr. DeLia and to raise funds for TTTS program.
This fundraising day plans to raise donations for Dr. DeLia’s pioneering laser surgery to correct the condition in identical twins called twin to twin transfusion syndrome. Please start collecting funds today and bring them to him personally. In addition, a welcome reunion for the southern region of parents who lost twin(s), twin survivors, parents, friends and healthcare professionals who would like to visit with Dr. DeLia, share stories of hope, survival, courage and learn more about the pioneering laser surgery on identical twins. Donations are tax deductible and made out to Medical College of Wisconsin Twin to Twin Transfusion Syndrome Program.
TTTS has serious consequences for each twin. The complications of TTTS arise due to the presence of placental anastomoses, unbalanced placental sharing, preterm labor, or a variable combination of all of these factors. If TTTS is detected in the first 20 weeks of pregnancy is left untreated, there is a 70-100% chance that the twins will not survive. Ultrasound detection is key.
Following the Reunion with Dr. DeLia at 7pm Emma is having her friends in for a Hawaiian Luau Birthday Party and asking her friends for a donation in lieu of a birthday present.
Tax Exemption Information: Medical College of Wisconsin Twin to Twin Transfusion Syndrome Program Tax ID# 39-0806261