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Family Soderlund's Fundraiser:

September 19 Global Aortic Dissection Awareness Day

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500 Posters and 10.000 flyers ordered for 14 countires around the globe.
March 23, 2016

With only 180 days to go until September 19 - we have 500 Posters and 10.000 flyers ordered for 14 countires around the globe. We hope that  See more

BENEFITING: JOHN RITTER FOUNDATION FOR AORTIC HEALTH

EVENT DATE: Sep 19, 2016

Family Soderlund

THE STORY:

"Today Is A Good Day" is the official slogan for the Aortic Dissection Awareness Day September 19. Today is a good day , just because we are alive also today. And many of us in the global community of AD survivors have The John Ritter Foundation to thank for this day.

Survivors in some countries outside USA also want to help The John Ritter Foundation in their Awareness work and the support they give to The John Ritter Research Program in Aortic and Vascular Diseases at The University of Texas Health Science Center at Houston (UTHealth).

Today the world recognizes tens of thousands of illnesses. About six thousand (6.000) of these are classified as rare diseases.

One of all these diseases is FAMILIAL THORACIC AORTIC ANEURYSM AND DISSECTION (FTAAD)

ORPHA91387 lists FTAAD - Familial Thoracic Aortic Aneurysm and Dissection, as a a familiar rare disease.

Recent finding from The John Ritter Research team shows that almost 25% of all persons who have a thoracic aortic aneurysm or dissection - have one of the mutated genes that are connected to FTAAD.

Every year 30 persons out of 1 million get ill in aortic dissection. Half of them die before there is time to give them a proper diagnose.

If we can find out who carries the "silent killer" before they get actue ill, we know that thoracic planned surgery have a positivt outcome in more than 98% of the cases.

That is WHY - we do this. We think we actually can save lives by trying to help The Ritter Foundation to continue to support the research at The John Ritter Research Program in Aortic and Vascular Diseases, finding out more about aortic diseases, including genetics research showing us more each year about aortic diseases also beeing familiar diseases.

ACTA2 in 2009, and FOXE3 and LOX in 2016 - are discoveries that saves lives, all over the globe.

Supporting The Ritter Foundation – is acutally supporting your self and your loved ones, if you or anyone in your family or among your friends are affected by rare aortic disease.

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To This Fundraiser

$50

MONEY RAISED
  • Marianne Söderlund

    $25

  • AD Awareness Day friends in Europe

    $25

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100% Raised of $50 Goal

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The Team: $50 TOTAL RAISED SO FAR

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Donor Comments

AD Awareness Day friends in Europe

AD Awareness Day friends in Europe

DONATION: $25

ACTA2 FOXE3 and LOX are discoveries that saves lives. Thank you. 2 years ago

Marianne Söderlund

Marianne Söderlund

DONATION: $25

To the John Ritter Foundation for their good work 2 years ago