This fundraiser is for the daughters of my dear friend, Kristen Gray. Both of her daughters were diagnosed at the ages of 2 and 4 years old with Battens disease which is an incurable neurodegenerative disorder with life expectancy of only 6 to 12 years. You don't have to be a mom to understand the kind of devastation this brings to a family. Kristen and I have been friends since our sorority days at USC. She is an exceptional mother and friend and the strength she has exhibited since receiving both diagnoses is beyond remarkable. This same strength is present in the eyes of these brave little girls who will need our help to fight this disease.
Please donate today to help the foundation find a cure for this and other rare diseases that affect children like Charlotte and Gwenyth. Thanks in advance for your support. With all my love, Shannon
To hear more of their story and learn more about Battens disease as well as their efforts in finding a cure, go to:
Barry's Bootcamp Event
Date: August 20, 2016
Time: 3:30 pm - 4:30 pm