Walk for JM
June 28, 2017
Click the link below for information about the walk! http://www.curejm.org/events_2017/walk_strong_to_cure_jm_flyer_MASS_2017_press.pdf See more
BENEFITING: Cure JM Foundation
My senior year of college I began having symptoms of what we now know is Dermatomyositis. Although I was 22 at the time I was diagnosed, I unfortunately have had the disease since I was younger but didn't know it until 2 years ago. We spent months trying to pinpoint the reasoning behind all the pain throughout my whole body. We went to allergists, many doctors, changed my diet and still couldn't find a reason for everything. I couldn't walk up the stairs without feeling like I was going to collapse. Within weeks I couldn't do anything on my own. I couldn't shower, get dressed, wash my hair, hold my tooth brush, tie my shoes, put on my jacket, nothing. You think of it, I probably couldn't do it. I quickly began to lose my hair and I couldn't swallow any food. Finally, we went to a Dermatologist, they took a skin biopsy and thats when they diagnosed me with DM. We quickly made an appointment with the rheumatologist who specialized in Dermatomyositis and I began treatment to battle this horrendous disease that left me almost immobile. I spent my whole winter break of my senior year on the couch not able to do anything. I couldn't do anything because my body would get so exhausted so quickly that I didn't want to move. However, I wasn't going to give up. As hard as it was, I fought until I was better and I still fight everyday. Thankfully, we had (and still do have) an amazing team of doctors that attacked this disease quickly and helped me to slowly get back to my normal self. It took about a year and a half for me to feel like I did before I got diagnosed and I still continue to take medicine everyday and treatments every month to keep everything under control. Recovery is exhausting but if we all fight together we can and will find a cure for this disease. Please join me in raising money for everyone who has to battle this disease no matter how old. Every penny is a step closer to finding a cure.