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shari Wensley

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Tom
Tom SAYS:
Thank you all so much for yo…
Thank you all so much for your donations, support and kind words of encouragement over the past months. Our BALS Marathon Team raised $104,324 from 191 donations. You are all incredibly generous and I hope you feel great about that. It feels good to do good!

The L.A. Marathon went well for the whole team. Mary completed her first 26.2, so she was guaranteed a PR. Maureen is a veteran marathoner and kept her focus on the pizza and beer at the finish. Tom stayed with our wheelchair marathoner, Chris, for the whole distance. Mike was having a tough day with early debilitating shin splints, but when he caught up to the wheelchair at mile 20 he was able to enjoy the last six miles running with the chair, having put his own pain in perspective. Pushing the chair is a very uplifting experience and the runners and spectators really respond to the effort. There is a tradition at the end that the ALS marathoner gets out of the chair and walks across the finish line with his family. It’s an emotional experience and worth taking a look at the pictures here: https://www.facebook.com/Beat-ALS-Marathon-Team-686930354690923/

The ALS Association’s Chief Scientist, Lucie Bruijn, Ph.D. MBA, sent a nice update explaining how our donations are funding research right here in the West through the Neuro Collaborative, which combines the efforts of three prominent laboratories at Cedars-Sinai, UCSD and the Gladstone Institutes (UCSF). These efforts are currently leading to actual clinical trials that show promise and also are developing technologies that will facilitate their transition from bench science to effective therapies. There is hope and we are making progress.

I’d like to express one last thank you for sticking with us these four years. I know donor fatigue sets in and that’s especially true after Michael’s passing, which took away that personal connection and urgency. But I know exactly what Michael would be doing if he were here and one of us wasn’t. He would be putting his head down and doing the work and trying to help other families dealing with the worst news they will ever hear. He would want to offer them some comfort and hope. And that is why we will be back next year and we hope you will be right here with us.
6 months ago
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Tom
Tom SAYS:
<23 Hours to go! Thank you all so much for your generous support. You make it all worthwhile. Over $62K so far! Here is a message from Mike so please keep reading:

Dear friends and family, Thank you so much for your kind donation to help find a cure or treatment for Lou Gehrig’s disease. I am humbled by the generosity of everyone and am excited to be part of what is some exciting science in this neurological field. Our family is blessed to have you all as friends. I will pray for you and yours as we fight this battle against this terrible disease. Please keep me in your prayers and if you are out at the LA Marathon this St. Pat’s Day, look for us at the finish line! Special thanks to Tom, my big brother, for rising to the challenge and going to battle against ALS! 26.2 miles of fight against ALS! Thank you again!

Michael
3 years ago
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shari Wensley
Laguna Niguel, CA United States
CROWDRISING SINCE: Mar 16, 2013
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shari
Wensley

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