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Shawna Camilleri

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Shawna Camilleri
Boca raton, FL United States
CROWDRISING SINCE: May 21, 2013
Stuff About Me:

I will be running the NYC Half on March 18, 2018 and the NYC Full Marathon on November 4, 2018 to bring awareness and funding for research to find a cure for Epilepsy. I run for my son, Keenan, who fights a debilitating rare genetic disease called Microcephaly Capillary Malformation Syndrome with epilepsy at the forefront. Keenan has approximately 100 seizures a day but continues to power through. He spent 196 days in the PICU; 27 of those days in Miami before being air ambulanced to NYULMC in NYC. He underwent 2 brain surgeries just after his 1st birthday, a VNS implantation device, then a G-tube. He is on numerous medications around the clock. Most children of this disease are not expected to make it past the age of 2. For every day that we have Keenan, we have NYULMC to thank. I know in my heart Keenan would want me to do this, to thank Dr. Devinsky, and all of NYULMC who saved him, today and counting. We cherish everyday forward and focus on quality of life rather than quantity. The hope is to raise funding and awareness so other children do not have to go through the journey that Keenan has had to endure. All funds will go to research efforts to find a cure. 

With much appreciation, love, & gratitude,

Shawna, Mike and Keenan Camilleri

VOTE

CR Impact Points

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CR Impact Points

If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for Shawna this month. Come back next month and vote again if you still love Shawna. Thanks to your vote, Shawna earned 100 CrowdRise Impact Points (CIPs). CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.

306,874

Total Impact Points

Shawna Camilleri's Fundraisers

FACES - NYC TCS Marathon 2018

FACES - NYC TCS Marathon 2018

Amount Raised:

$14,813

 

212% Raised of $7,000 Goal

Shawna Camilleri - Tunnel to Towers Tower Climb Atlanta 2018

Shawna Camilleri - Tunnel to…

Amount Raised:

$100

 

100% Raised of $100 Goal

FACES - UA NYC Half 2018

FACES - UA NYC Half 2018

Amount Raised:

$7,205

 

240% Raised of $3,000 Goal

Shawna Camilleri - Tunnel to Towers Tower Climb NYC 2018

Shawna Camilleri - Tunnel to…

Amount Raised:

$250

 

100% Raised of $250 Goal

Shawna Camilleri - Tunnel to Towers Tower Climb NYC

Shawna Camilleri - Tunnel to…

Amount Raised:

$3,005

 

601% Raised of $500 Goal

American Red Cross

American Red Cross

Amount Raised:

$477

Shawna Camilleri - T2T Tower Climb

Shawna Camilleri - T2T Tower…

Amount Raised:

$1,160

Silly Uncle Billy Team

Silly Uncle Billy Team

Amount Raised:

$500

 

100% Raised of $500 Goal