EVENT DATE: Aug 17, 2017
Format: 4 person “glow” scramble
Event Date: Thursday, August 17th
Time: Check-In begins at 6:30 P.M. with a shotgun start at 8 P.M.
Location: Oak Crest Golf Course, Norway, MI
Cost: $40 per golfer to be paid the night of the event!
Proceeds from the night will be going to Dysautonomia International on behalf of Tony Solda (son of Mike and Kris Solda).
Contact Kris Solda at 906-458-1304 or email her at email@example.com to sign-up!
(FYI…You can sign up a team, as a couple or individually).
Dysautonomia is an umbrella term used to describe certain medical conditions that cause the autonomic nervous system to not work properly. The autonomic nervous system controls all of the functions in our body that we don’t have to think about like heart rate, blood pressure, digestion, and temperature control to name a few. Therefore, patients with dysautonomia have trouble controlling heart rate, blood pressure, body temperature and many other functions. The symptoms are unique to each patient and so is treatment. Dysautonomia patients usually look like normal healthy people but there is havoc going on internally causing them to feel very sick and some of them are unable to function in day to day activities.
If you have never heard of dysautonomia you are not alone. Since our son, Tony, was diagnosed last summer at the age of 9 we have found that most people we talk to have never heard of it. We also found that dysautonomia is a hard thing to diagnose and at least for him it is a hard to treat. His health continually declined for over a year causing him to miss the majority of his 4th grade school year as well as all the activities a 9-year old boy should be doing. Between numerous doctor appointments, medications, dietary changes and acupuncture he has become more functional but still has quite a few challenges. After the journey we have been on we have seen how debilitating dysautonomia can be first-hand and see the need for better diagnostic and treatment options. Therefore, we decided as a family that we wanted to put together a charity golf outing with the funds going to research for dysautonomia.
I found all of my information at www.dysautoniomiainternational.org and encourage you to check out the site as well.
If you are not able to join us for the golf outing but want to help the cause you can do so on this page.
Thank you for reading and we hope that you have learned something new today.
The Solda Family