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Anne Croy's Fundraiser:

'Show Me' A Cure: Missourians Unite Against Degenerative Retinal Disease

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Anne Croy

THE STORY:

Mark and I will be running the 2013 Chicago Marathon on October 13th for The Coalition for Usher Syndrome Research (http://www.usher-syndrome.org).  We have a 26 year old daughter with Usher Syndrome Type 2.

The Coalition for Usher Syndrome Research is dedicated to helping families cope with Usher Syndrome while working diligently to find a cure.  The Coalition counts a number of leading institutions and researchers among it’s members. They are truly international in scope with member institutions from across the globe including some of the finest international organizations.

Usher syndrome is a rare inherited condition characterized by hearing impairment and progressive vision loss. The vision loss is due to retinitis pigmentosa (RP), a degenerative condition of the retina, and usually appears during adolescence or early adulthood.  Symptoms vary from person to person and progress at different rates.

Researchers estimate that as many as 50,000 people in the U.S. have Usher syndrome. Worldwide, it is the leading cause of combined deafness and blindness. While there are no treatments for Usher syndrome, intensive research is underway to discover the causes of, and treatments for, all types of the disease.  

The Foundation Fighting Blindness (FFB) is aggressively studying causes and potential treatments for Usher syndrome and other retinal degenerative diseases. Excellent progress has been made recently in the areas of gene therapy, retinal implants, stem cell therapy and drug-based therapy.

We will divide our funds between The Coalition for Usher Syndrome Research and The Foundation Fighting Blindness.

Thank you so very much for your support!

 

 

 

$1,675

MONEY RAISED
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  • Mark Dunning

    $100

  • Jane and Phil

    $50

  • Stichting MUS, holland

    $25

  • Dave Haggard

    $50

  • Cathy Hwang

    $40

  • Art and Judy

    $100

  • Brian M.

    $25

  • Melissa and Gary Ryan

    $100

  • Abbe and Tom Ehlers

    $50

  • Bob and Jamie Craft

    $200

  • Carole

    $25

  • Duke & Maxine Croy

    $500

  • Pastaria Restaurant

    $200

  • Taran Zahra

    $40

  • Mark Fetty

    $100

  • Donna Williamson

    $20

  • Margaret and Steve Wolford

    $50

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67% Raised of $2,500 Goal

The Team: $1,675 TOTAL RAISED SO FAR

Fundraiser Title

Anne Croy

Amount Raised

$1,635

 

65% Raised of $2,500 Goal

Fundraiser Title

Robert Craft

Amount Raised

$40

Donor Comments

Margaret and Steve Wolford

Margaret and Steve Wolford

DONATION: $50

3 years ago

Donna Williamson

Donna Williamson

DONATION: $20

I taught Anne's beautiful children and I love this family. 4 years ago

Mark Fetty

Mark Fetty

DONATION: $100

4 years ago

Taran Zahra

Taran Zahra

DONATION: $40

4 years ago

Pastaria Restaurant

Pastaria Restaurant

DONATION: $200

4 years ago

Duke & Maxine Croy

Duke & Maxine Croy

DONATION: $500

4 years ago

Carole

Carole

DONATION: $25

Tribute to Anne, for being such a good mom and friend, and for your dedication to your children! 4 years ago

Bob and Jamie Craft

Bob and Jamie Craft

DONATION: $200

4 years ago

Abbe and Tom Ehlers

Abbe and Tom Ehlers

DONATION: $50

Run far, run happy, run to beat this disease! 4 years ago

Melissa and Gary Ryan

Melissa and Gary Ryan

DONATION: $100

Go team! 4 years ago