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Dan Stein's Fundraiser:

Siesta Key Paddleboards Race for Champ

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BENEFITING: The Champ Foundation

Dan Stein

THE STORY:

Pearson Syndrome (PS) is a multi-system disease caused by a deletion in mitochondrial DNA. The hallmark features are sideroblastic anemia and pancreatic insufficiency. PS is often fatal in infancy. In addition to the hematological and pancreatic symptoms, PS can impair the heart, kidneys, eyes, ears and brain. Survivors develop Kearns-Sayre Syndrome. Since its discovery in 1979 by Howard Pearson, there have only been around 100 cases reported in the medical literature. PS is probably under-diagnosed, since few doctors are aware of the disease’s existence, much less its symptoms. The Champ Foundation was founded in 2015 in honor of William Reynolds, who was diagnosed with Pearson Syndrome when he was two months old. William has been severely anemic and neutropenic since birth, but has yet to experience any other symptoms of the disease. It is very likely that he will, unless we can better understand Pearson Syndrome and how to alter its course.

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To This Fundraiser

$985

MONEY RAISED
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  • Anonymous

    $15

  • Anonymous

    $15

  • Anonymous

    $15

  • Anonymous

    $25

  • Niki Pham

    $20

  • Anything to help

    $85

  • The James Heagerty Family

    $100

  • Anonymous

    $50

  • Jaime Perez

    $100

  • Anonymous

    $35

  • Anonymous

    $10

  • robair

    $15

  • Cathy Smith

    $100

  • Stephanie Denick- Travis

    $100

  • Scott Geezil

    $100

  • Ken & Carla Baylor

    $200

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25% Raised of $4,000 Goal

Fundraise for this Campaign

The Team: $985 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Dan Stein

Amount Raised

$320

 

8% Raised of $4,000 Goal

Fundraiser Title

Jackie Lee

Amount Raised

$135

Fundraiser Title

Joe Schatz

Amount Raised

$100

Fundraiser Title

Jaime Perez

Amount Raised

$100

Fundraiser Title

Cathy Smith

Amount Raised

$100

Fundraiser Title

Stephanie Denick- Travis

Amount Raised

$100

Fundraiser Title

Scott Geezil

Amount Raised

$100

Fundraiser Title

Alison Vesco

Amount Raised

$15

Donor Comments

Ken & Carla Baylor

Ken & Carla Baylor

DONATION: $200

In honor of Lindsay Sharrer 1 year ago

Scott Geezil

Scott Geezil

DONATION: $100

1 year ago

Stephanie Denick- Travis

Stephanie Denick- Travis

DONATION: $100

1 year ago

Cathy Smith

Cathy Smith

DONATION: $100

1 year ago

robair

robair

DONATION: $15

1 year ago

Anonymous

ANONYMOUS

DONATION: $10

1 year ago

Anonymous

ANONYMOUS

DONATION: $35

1 year ago

Jaime Perez

Jaime Perez

DONATION: $100

1 year ago

Anonymous

ANONYMOUS

DONATION: $50

1 year ago

The James Heagerty Family

The James Heagerty Family

DONATION: $100

We pray for you and your family every day, William. Stay strong! 1 year ago