Skip to content
ebresearch's profile image - click for profile

EB Research Partnership's Fundraiser:

Team JGSF NYC Marathon 2013

EB Research Partnership's Photo
EB Research Partnership's Photo

BENEFITING: EB Research Partnership

EVENT: 2013 ING New York City Marathon

EVENT DATE: Nov 03, 2013

THE STORY:

The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa ("EB").  EB is a devastating and life-threatening skin condition that affects children from birth.  Individuals with EB lack a critical protein that binds the layers of skin together.  Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal.  

The Jackson Gabriel Silver Foundation ("JGSF") is aggressively funding research and supporting the tremendously encouraging and viable scientific work taking place at leading institutions around the country, including Stanford, USC, and the University of Minnesota.  In three short years, JGSF has raised over $1.5 million and has made a significant difference in the field of EB research and the pursuit of a cure.  

Thank you all for your support in continuing our mission!

$52,478

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • The O'Connells

    $25

  • CP

     

  • Taub Family

    $100

  • Anonymous

    $20

  • Orla Bowie

    $25

  • Bobby and Heather Evers

    $50

  • The McElroys

    $20

  • Mary Hauck (Searingtown School)

    $25

  • amy kubel

     

  • Darlings

     

  • The Brinkers

     

  • Jeremy Liss

     

  • Aron Streit, Inc

    $180

  • Tom and Sharon Murphy

    $100

  • susan amy nayowith

     

  • Matt and Norah Meadows

    $50

  • Phin Upham

    $103

  • Michael and Meghan

    $25

  • GENEX Matching Gifts

    $200

  • 123456789

    $25

  • 12345678

    $25

  • A & M Ross

    $50

  • Aiello Family

    $50

  • Herb Kopelow

    $25

  • Guy

    $25

  • Allin Family

    $50

  • Dani Andrade

    $50

  • Stephanie Aiello

    $25

  • Larry & Sharon Iannuzzi

     

  • Iron Chef Sauces

    $300

  • Matthew and Norah Meadows Family

    $100

  • in memory of Nate Caruso (JEB-herlitz)

    $250

  • Peter & Lesley

    $50

  • Joan Paul

    $25

  • Marcy & Irv Berman

     

  • Jaclyn Carlo

    $20

  • Karen and Kieran O'Brien

    $50

  • Erin Wilder

    $100

  • Sarah Perry

    $100

  • Patti Russo

     

  • Brian & Jeanne Murphy

    $250

  • The Greenfields

    $100

  • Grace Murphy

    $50

  • Drew Beach

    $50

  • Katherine Chung

    $40

  • John & Larisa Murphy

    $250

  • Misisco

    $500

  • Andrea Somma

    $25

  • Simon Spong

    $50

  • Brian Kiernan

    $100

  • The Constantino Family

    $50

  • Stephi&Cliff;

     

  • The Korman Family

    $100

  • Erin, Max and Abby Dunlap

    $50

  • The Margolnick Family

    $30

  • Magnus, Camilla & Ruben

     

  • The Wallach Family

    $200

  • Team Silver

    $50

  • Bob Powell

    $50

  • Anonymous

     

  • The Kaufman Family

    $150

  • Clark Griswald

    $41

  • Anonymous

     

  • Jamie Kaufman

     

  • Brian and Jeanne Demasters

    $120

  • Georgia fundraiser

    $955

  • Carrie and Roger Kushner

    $100

  • Liz and Tim

    $25

  • Barbara and Jeff Kohen

    $100

  • Gia Rizzitello

    $35

  • Christina Wittek

    $25

  • Niklas

     

  • The Goldsteins

    $36

  • Training Wheels Stroller Fitness

    $35

  • Keryn Thompson

    $25

  • Searingtown friends

    $35

  • Charlotte and Ryan Kenny

    $200

  • Susan and Michael

     

  • Rick and Peggy Greenfield

    $25

  • Hanna & Erik

     

  • ben kilroy

    $50

  • Caroline O Dowd

    $50

  • Kaupin & Purvi Brahmbhatt

    $50

  • Ferri, Scott, Jordana & Mason Kohen

     

  • Cheryl and Arthur Kohen

    $100

  • The Kern Family

    $20

  • Marie Dunne

    $50

  • Frank, Ginny, Frankie, and Henry Murphy

    $50

  • butterflies

    $35

  • Anna and Richie D'Egidio

    $25

  • Terriann, Michael, Jack & Meghan Butler

    $50

  • Jodie Ruggiano

    $25

  • Patricia Fruda

    $25

  • Anonymous

     

  • Carla Varner

    $50

  • Harriett and Fred Rosen

    $50

  • GJB

    $250

  • Kelly Whiting

    $125

  • Jeremy & Stephanie

    $200

  • Anonymous

    $25

  •  
  •  
  •  
 

175% Raised of $30,000 Goal

Fundraise for this Campaign

The Team: $52,478 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Andrew Tavani

Amount Raised

$10,225

 

409% Raised of $2,500 Goal

Fundraiser Title

Siofra Potash

Amount Raised

$7,202

 

144% Raised of $5,000 Goal

Fundraiser Title

Kathleen Twible

Amount Raised

$5,070

Fundraiser Title

Drew DeMasters

Amount Raised

$4,185

 

140% Raised of $3,000 Goal

Fundraiser Title

kate riivald

Amount Raised

$4,060

 

81% Raised of $5,000 Goal

Fundraiser Title

Kara McGann

Amount Raised

$4,045

 

162% Raised of $2,500 Goal

Fundraiser Title

Jason Koenig

Amount Raised

$3,347

 

112% Raised of $3,000 Goal

Fundraiser Title

Benjamin Wegman

Amount Raised

$3,045

 

122% Raised of $2,500 Goal

Donor Comments

Anonymous

ANONYMOUS

DONATION: $25

3 years ago

Jeremy & Stephanie

Jeremy & Stephanie

DONATION: $200

3 years ago

Kelly Whiting

Kelly Whiting

DONATION: $125

4 years ago

GJB

GJB

DONATION: $250

4 years ago

Harriett and Fred Rosen

Harriett and Fred Rosen

DONATION: $50

In honor of Larry and Cyndy Fields' 40th Anniversity 4 years ago

Carla Varner

Carla Varner

DONATION: $50

Great job Kara!!! 4 years ago

Anonymous

ANONYMOUS

4 years ago

Patricia Fruda

Patricia Fruda

DONATION: $25

4 years ago

Jodie Ruggiano

Jodie Ruggiano

DONATION: $25

4 years ago

Terriann, Michael, Jack & Meghan Butler

Terriann, Michael, Jack & Meghan Butler

DONATION: $50

4 years ago