Skip to content
1000laces's profile image - click for profile

Andrew Tavani's Fundraiser:

Team JGSF NYC Marathon 2013

Andrew's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2013 ING New York City Marathon

EVENT DATE: Nov 03, 2013

Andrew Tavani

THE STORY:

Ellie is now 7 years old and was born with Epidermolysis Bullosa, a gradual physical debilitating disorder with no cure and no treatment.  She lives every day in her life wrapped in bandages and has some form of pain daily.  We are looking forward to a cure so that Ellie and others like Ellie can live a pain free, bandage free life as soon as possible.!

.The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa ("EB").  EB is a devastating and life-threatening skin condition that affects children from birth.  Individuals with EB lack a critical protein that binds the layers of skin together.  Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal. 

The Jackson Gabriel Silver Foundation ("JGSF") is aggressively funding research and supporting the tremendously encouraging and viable scientific work taking place at leading institutions around the country, including Stanford, USC, and the University of Minnesota.  In three short years, JGSF has raised over $1.5 million and has made a significant difference in the field of EB research and the pursuit of a cure.

Thank you all for your support in continuing our mission!

$10,225

MONEY RAISED
  • Tavani Soccer

    $225

  • 1000 laces

    $5,000

  • 1000Laces.com

    $5,000

  •  
  •  
  •  
 

409% Raised of $2,500 Goal

Fundraise for this Campaign

The Team: $52,478 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Andrew Tavani

Amount Raised

$10,225

 

409% Raised of $2,500 Goal

Fundraiser Title

Siofra Potash

Amount Raised

$7,202

 

144% Raised of $5,000 Goal

Fundraiser Title

Kathleen Twible

Amount Raised

$5,070

Fundraiser Title

Drew DeMasters

Amount Raised

$4,185

 

140% Raised of $3,000 Goal

Fundraiser Title

kate riivald

Amount Raised

$4,060

 

81% Raised of $5,000 Goal

Fundraiser Title

Kara McGann

Amount Raised

$4,045

 

162% Raised of $2,500 Goal

Fundraiser Title

Jason Koenig

Amount Raised

$3,347

 

112% Raised of $3,000 Goal

Fundraiser Title

Benjamin Wegman

Amount Raised

$3,045

 

122% Raised of $2,500 Goal

Donor Comments

1000Laces.com

1000Laces.com

DONATION: $5,000

5 years ago

1000 laces

1000 laces

DONATION: $5,000

5 years ago

Tavani Soccer

Tavani Soccer

DONATION: $225

5 years ago