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Jason Koenig's Fundraiser:

Team JGSF NYC Marathon 2013

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Jason's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2013 ING New York City Marathon

EVENT DATE: Nov 03, 2013

Jason Koenig

THE STORY:


And this is what my fundraising page says:

I'm giving it another go and on November 3rd, I will be running the NYC Marathon to support the Jackson Gabriel Silver Foundation (JGSF). For those of you who contributed last year, despite the cancellation of the NYC Marathon, your donation was greatly appreciated.  So let's do it again for this great cause. 

The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa ("EB").  The organization was founded by Alex and Jamie Silver whose son, Jackson, has EB.  EB is a devastating and life-threatening skin condition that affects children from birth.  Children with EB lack a critical protein that binds the layers of skin together.  Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal.  Practically speaking, a child who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body.

We've watched Jackson grow since we first met the Silvers several years ago and he was a pre-school classmate of our eldest daughter, Amelia.  He is an incredible kid with a curiosity and intellect that far surpasses his few years.  More significantly, he is an incredibly strong young boy who handles EB with a strength and bravery that few could ever know.   

Please support Jackson and other children like him by donating.   I thank you for your support and I know Jackson and the Silvers do to!

Jason 

$3,347

MONEY RAISED
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  • Caryn Feinberg

     

  • Anonymous

    $100

  • Kara and Craig Schissler

    $50

  • Leisman Family

     

  • Bob & Rosanne

     

  • Rafi Zitvar

    $100

  • Charbel Zreik

    $100

  • Dan and Sara Sapadin

    $100

  • Josh Becker

    $50

  • The Kaplan Family

    $100

  • Peter & Shayna Bentley & Family

    $100

  • Elhanan and Michelle

    $50

  • The Baim Family

     

  • Berris Family

    $250

  • Helene and Earl Koenig

     

  • Stephanie and Kevin Leichter

     

  • Randy Goldstein

     

  • Taub Family

    $100

  • Darlings

     

  • The Brinkers

     

  • Jeremy Liss

     

  • Matt and Norah Meadows

    $50

  • Phin Upham

    $103

  • Matthew and Norah Meadows Family

    $100

  • Marcy & Irv Berman

     

  • The Greenfields

    $100

  • Katherine Chung

    $40

  • The Wallach Family

    $200

  • Carrie and Roger Kushner

    $100

  • Barbara and Jeff Kohen

    $100

  • The Goldsteins

    $36

  • Susan and Michael

     

  • Ferri, Scott, Jordana & Mason Kohen

     

  • Cheryl and Arthur Kohen

    $100

  • Harriett and Fred Rosen

    $50

  • GJB

    $250

  • Kelly Whiting

    $125

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112% Raised of $3,000 Goal

Fundraise for this Campaign

The Team: $52,478 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Andrew Tavani

Amount Raised

$10,225

 

409% Raised of $2,500 Goal

Fundraiser Title

Siofra Potash

Amount Raised

$7,202

 

144% Raised of $5,000 Goal

Fundraiser Title

Kathleen Twible

Amount Raised

$5,070

Fundraiser Title

Drew DeMasters

Amount Raised

$4,185

 

140% Raised of $3,000 Goal

Fundraiser Title

kate riivald

Amount Raised

$4,060

 

81% Raised of $5,000 Goal

Fundraiser Title

Kara McGann

Amount Raised

$4,045

 

162% Raised of $2,500 Goal

Fundraiser Title

Jason Koenig

Amount Raised

$3,347

 

112% Raised of $3,000 Goal

Fundraiser Title

Benjamin Wegman

Amount Raised

$3,045

 

122% Raised of $2,500 Goal

Donor Comments

Kelly Whiting

Kelly Whiting

DONATION: $125

5 years ago

GJB

GJB

DONATION: $250

5 years ago

Harriett and Fred Rosen

Harriett and Fred Rosen

DONATION: $50

In honor of Larry and Cyndy Fields' 40th Anniversity 5 years ago

Cheryl and Arthur Kohen

Cheryl and Arthur Kohen

DONATION: $100

5 years ago

Ferri, Scott, Jordana & Mason Kohen

Ferri, Scott, Jordana & Mason Kohen

5 years ago

Susan and Michael

Susan and Michael

5 years ago

The Goldsteins

The Goldsteins

DONATION: $36

5 years ago

Barbara and Jeff Kohen

Barbara and Jeff Kohen

DONATION: $100

5 years ago

Carrie and Roger Kushner

Carrie and Roger Kushner

DONATION: $100

Run Jason Run. Forget how old your legs are! We are so proud of you. 5 years ago

The Wallach Family

The Wallach Family

DONATION: $200

5 years ago