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$400

 

13% Raised of $3,000 Goal

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Sing Your ALS Off - Doylestown Photo
Sing Your ALS Off - Doylestown Photo
Sing Your ALS Off - Doylestown Photo
Sing Your ALS Off - Doylestown Photo

The Story

EVENT DATE: Oct 23, 2014

Event Details:

Event Date:  Thursday, October 23rd, 2014

Time: 7PM to 10PM

Place:  The Standard Club  127 E State St. Doylestown

Special appearance by Jamie Stem from the band, Sinch (to help us really sing our ALS off)

Fun, food, beer, wine, soda, light fare, silent auction, 50/50

All Donations go to 90 Foundation, a non profit 501 (c) (3) Foundation tax deductible

 

About the 90 Foundation

Our mission is to support the most promising research to find a cure for ALS. We imagine a world where ALS is a treatable and manageable illness, rather than an underfunded and terminal disease, which devastates the lives of individuals and their families receiving a diagnosis every 90 minutes.

ALS, or Lou Gehrig’s disease, is a rapidly progressive and ultimately fatal disease. ALS robs you of the ability to walk, talk, eat, drink, and breathe, while leaving your fully-functioning mind trapped. There is no known cure, and the few treatment options that exist extend life a short period of time, around 2-3 months. Death usually occurs 2-to-4 years from diagnosis.

 

Doctors and researchers are leading the charge to find a cure, but are in desperate need of funding. With your help, we can accelerate the treatment and cure for ALS from decades to years, save the lives of tens of thousands of people, and create a future where ALS isn’t a fatal diagnosis.

 

We created the 90 Foundation, a Texas 501c3(pending application approval), to raise money for research to treat and cure ALS. We are dedicated to making sure that 100% of the net proceeds we raise goes directly towards research and are working directly with Houston Methodist Neurological Institute and the ALS Therapy Development Institute to ensure that happens.

 

Jay’s story

 

During May 2014, I won a Popular Science Invention Award, celebrated my wife’s 37th birthday, went indoor skydiving to celebrate my daughter’s 7th birthday, and was diagnosed with ALS.

 

Lou Gehrig famously said during his farewell speech that he was “the luckiest man on the face of the earth.” I always thought that was just a positive spin on receiving a terminal diagnosis. But now I get it. I have a blessed life. The company I founded, Livid Instruments, just celebrated 10 years in business and we are finally enjoying the success of all of our hard work. I am surrounded by an amazing, large and loving family and have amassed some of the best friends a person could ask for, both old and new. This year I will celebrate 11 years of marriage to my best friend, Missy Mekosh, and have two of the greatest little girls (Loghan 7, Peyton 4) that a Dad could ask for. So I get it Lou, I too feel like the luckiest man alive.

 

I’ve been dealt this hand and I am playing to win. Since being diagnosed I’ve continued to wakeboard with my friends, go camping with my kids, ride off-road motorcycles, started a new form of martial arts and don’t plan to stop anytime soon (follow my Facebook page for proof!). I will continue to take my company into new markets and become a better father, husband, boss, son, and friend. ALS isn’t an incurable disease it’s an underfunded disease. With proper funding, research, and treatment, the thousands of soldiers, athletes, fathers, mother, sons, and daughters diagnosed with this disease won’t have to die with it. I plan to change that, I know I can.

 

Team Organizer's Photo

The 90 Foundation

Amount Raised:

$400