BENEFITING: The S.L.E. Lupus Foundation
ORGANIZER: The S.L.E. Lupus Foundation
EVENT DATE: Nov 06, 2016
This is my first full marathon and second time running for Team Life Without Lupus. In March I ran the United Airlines NYC Half contributing over $1,500 to the $34,000 that our team raised to assist researchers in finding new medications and ultimately a cure to Lupus. For the TCS New York City Marathon, I have committed to raising over $3,000 to support the S.L.E. Lupus Foundation. I am excited to be running in the marathon this coming November and look forward to sharing my experience with you. Below is the story for why I am running this race.
Thank you and I am grateful for any donation, encouragement and/or support.
As an avid tennis player, my sister competed throughout her middle and high school years winning multiple state championships. As a sophomore, Ashley began to experience certain symptoms that, at the time, were chalked up to normal wear and tear of an intense schedule. However over Christmas break in 2010, she began exhibiting extreme symptoms and was rushed to the emergency room on Christmas Eve. That holiday proved to be the first time where our family seriously questioned the severity of these symptoms.
Over the next few months, Ashley trekked from doctor to doctor unable to identify the cause of these issues. There were days where her joints ached so much that she was unable to grasp objects. Other days, she experienced swelling and joint pain that made daily activities difficult. As a high school student-athlete, dizziness and light-headedness on the verge of blindness and fainting were certainly not typical feelings. Finally, after countless trips to different doctors, Ashley was diagnosed with a chronic autoimmune disease called Lupus. We had never heard of this disease, however we were quick to learn.
Fast forward to today, my sister recently graduated from Appalachian State University and is on her way to entering the business world. She must take a variety of pills to ease her symptoms and counteract this disease, but with hardship also comes changes for the better. Since her diagnosis, my sister has changed her eating habits and without a doubt, is the most knowledgeable in our family when it comes to nutrition and healthy eating habits. She also does not let Lupus hold her back, running, exercising and leading as active of a lifestyle as possible. I can only imagine what she goes through on a daily basis both mentally and physically, and I know there are struggles that I will never be able to relate to. Her life is constantly a work-in-progress in terms of understanding what works and what doesn’t work, but she is an inspiration to me. This is the reason why I run.
Team Life Without Lupus is the official competitive sports team of the S.L.E. Lupus Foundation and the Lupus Research Institute, the nation’s leading organization providing comprehensive support services and research funding for the lupus community. Through our team, amateur athletes gain entry into exciting world-class athletic events and raise funds for the fight against lupus.The S.L.E. Lupus Foundation's 'Team Life Without Lupus' is proud to represent the lupus community in New York City, across the United States, and around the world!