The incidence of vulvar cancer is rising. The American Cancer Society estimates that this year, 5,150 new cases of vulvar cancer will result in 1,080 deaths. This is equivalent to 13 new diagnoses, and approximately 2-3 deaths, per day. These statistics are only for the USA!
The Suzanne Lee Prince Foundation recognizes the lack of information about vulvar cancer. Therefore, our primary mission is to promote awareness – both to the public and to the medical community about this relatively undiscussed and unexplored type of cancer. For example, Renee T. of Minnesota immediately consulted her gynecologist when she noted a discolored area on her vulva. It was a precancerous lesion and treated successfully. She was grateful for the knowledge she had obtained from a Suzanne Lee Prince Foundation presentation on vulvar cancer. Over 80% of the common cell type of vulvar cancer can be treated successfully with early intervention. Sadly, a delay in diagnosis is common where some doctors delay biopsies to determine cancer and women feel embarrassed to seek early consultations – because of lack of information.
The Suzanne Lee Prince Foundation is a 100% volunteer organization – there are no salaries. 100% of all funds generated are spent on operation costs. Because vulvar cancer is rare, accounting for about 5% of all female gynecologic cancers, it is not well-studied. ACS estimates that 1 in 333 women may succumb to vulvar cancer in their lifetime. SLPF started allocating 50% of received donations towards a grant fund.
Suzanne Prince died of a rare form of vulvar cancer. She was blessed as her employer, Cisco Systems, afforded her the support to seek medical help from experts of the neuroendocrine cell type cancers which would otherwise not been paid by insurance. She also had a compassionate surgical oncologist who supported Suzanne's endeavors to seek treatment. She often remarked "what happens to women diagnosed with this disease who do not have a Cisco? and a Dr. Karen?" The answer is painfully clear...those women die without hope. Family and friends established SLPF to move forward the compassionate spirit of Suzanne Prince, an electrical engineer, lead guitarist, blues vocalist.
We honor the memory of Suzanne Prince and believe that together, we can rekindle hope for vulvar cancers for all women! Thank you for your support!
Read more at: www.hopeforvulvarcancer.org