BENEFITING: A Midwinter Nights Dream, Inc.
EVENT DATE: Apr 30, 2017
Join me and fellow SLU students on April 30th for a fun 5K run to raise funds and awareness for ALS research.
What is ALS? ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig's disease, is an aggressive neurodegenerative disease that causes muscle weakness, paralysis, and ultimately respiratory failure.
There is currently no cure for ALS. The average life expectancy of a patient who is diagnosed is 2-5 years.
100% of funds raised through this event will go to The Packard Center (http://www.alscenter.org/) which has been at the forefront of ALS Research over the past 15 years. Over 100 scientists from universities led by Johns Hopkins, government labs and biotech companies work together to share insights and materials to understand the biology of ALS and find a cure.
Get involved! My father, a St. Lawrence graduate, was diagnosed with ALS in 2006 and after rapidly losing his ability to control voluntary muscular functions including his speech, he passed away in 2008. There are very few treatment options to slow the progression, and the helplessness my family felt when it was detected is something I'm passionate about preventing for others. The success of this fundraiser means a lot to me, the individuals and their families currently suffering from this fatal disease. If you cannot participate in the event, I encourage you to donate - It’s about time we #strikeoutALS.