KrissyArgier's profile image - click for profile

Krissy Argier's Fundraiser:

SMA Wing Fest

Krissy's Photo

BENEFITING: Gwendolyn Strong Foundation

ORGANIZER: Joseph

Krissy Argier

THE STORY:

Today, I am asking for your help raising money for the Gwendolyn Strong Foundation, a nonprofit dedicated to funding research towards a cure for Spinal Muscular Atrophy (SMA). SMA is a type of muscular dystrophy and is the number one genetic killer of infants and young children. It is currently an incurable, terminal illness.

My friends the Byrds are parents to 4-year-old twins who unfortunately happen to suffer from SMA. Since this condition does not affect cognitive ability, Kyle and Lauren are happy, bright children. However, due to SMA, neither child was able to sit up or roll over as an infant nor will they ever enjoy riding a bike and playing tag, or be able to perform the dozens of other activities we all take for granted every day.

Here is some additional information about SMA:

-SMA is the number one genetic killer of young children.

-About 1 in 35 people unknowingly carry the gene responsible for SMA.

-1 in every 6,000 babies is born with SMA; SMA prevalence is comparable to ALS and Cystic Fibrosis.

-SMA impacts the ability to walk, sit, stand, eat, breathe, and swallow. SMA does not impact the mind and children with SMA are bright and social.

-There is currently no treatment and no cure for SMA.

 

But there is hope:The National Institutes of Health has chosen SMA as the neurological disorder closest to a cure. Leading U.S. researchers, such as Nobel laureate James Watson, have stated that with proper funding, a viable treatment for SMA is possible within five years.

Any donation helps and all donations are tax-deductible, with a receipt provided for your records.

On behalf of the Byrds and the thousands of other families currently fighting SMA, thank you for your consideration and generosity. Your donation will help ensure that a lack of funding does not stand in the way of finding a cure for this cruel illness.

Want to learn more about my friend’s twins with SMA? Check it out here: ByrdsForACure.com
 

DONATE

To This Fundraiser

$245

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Randie Houston

    $100

  • sanjay

    $100

  • Rachel

    $25

  • Rose Rath

    $20

  •  
  •  
  •  

Fundraise for this Campaign

The Team: $3,515 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Kel Williams

Amount Raised

$822

Fundraiser Title

Chris Byrd

Amount Raised

$712

Fundraiser Title

Rodney Hartwig

Amount Raised

$611

Fundraiser Title

Danielle Zeder

Amount Raised

$540

Fundraiser Title

Krissy Argier

Amount Raised

$245

Fundraiser Title

Adan Hinojosa

Amount Raised

$240

Fundraiser Title

Kelly Loubet

Amount Raised

$180

Fundraiser Title

Joseph Ranseth

Amount Raised

$165

 

8% Raised of$2,000 Goal

Donor Comments

Rose Rath

Rose Rath

DONATION: $20

8 years ago

Rachel

Rachel

DONATION: $25

8 years ago

sanjay

sanjay

DONATION: $100

8 years ago

Randie Houston

Randie Houston

DONATION: $100

8 years ago