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Charlotte and Gwenyth Gray Foundation's Fundraiser:

Smith Family Supporting CureBatten

Charlotte and Gwenyth's Photo
Charlotte and Gwenyth's Photo
Charlotte and Gwenyth's Photo
Charlotte and Gwenyth's Photo
Charlotte and Gwenyth's Photo
Charlotte and Gwenyth's Photo
Charlotte and Gwenyth's Photo

BENEFITING: Giving Back Fund

Charlotte and Gwenyth Gray Foundation

THE STORY:

Our daughter Mary was born May 19, 2009. Mary was 11 weeks premature and was two-months in the hospital and progressively got better. We knew that Mary was premature in walking and talking abilities but, the doctors attributed it to premature birth, we were told Mary would eventually catch up. At 1 year old Mary had her first MRI, and everything looked fine, at two years old Mary began to walk, and started to catch up with children her age. At 3 1/2 years old we noticed Mary had difficulty walking, and progressively got worse. Thinking it might be her vision we took her to an ophthalmologist, also to an orthopedic specialist. In 2014 we found out Mary was having seizures, three months later her doctors recommended genetic testing, and Mary was diagnosed with late infantile-NCL batten disease CLN6, and we were informed that Mary was the only one that had this rare disease at that time. We were devastated, when Mary was diagnosed with this rare disease. The geneticist told us that this disease was a Neurodegenerative brain disease that it would leave our daughter blind, immobile, cognitively impaired and eventually dead, between the ages of six and 12. The doctors said it was a one in four chance that our son John who is now two years old would be tested positive for the CLN6. When the test results returned we were devastated once again. Johnny has no symptoms at this time. Johnny is a healthy two-year-old boy who loves to play and jump and run with his cousins. My mother-in-law watching TV one night, came across Kristen Gray discussing her children with the same disease as Mary and Johnny. My mother-in-law called me the next morning and told me what she had watched, so I emailed the Charlotte and Gwenyth Gray Foundation, Kristen Gray responded with an email and was devastated to hear our news. She knew exactly what we were feeling. She forwarded our information to the doctors that she was working with. And here we are today on the brink of a miracle, our hopes and expectations that a cure will be found soon, our children's life depends on it. Time is running out we have a small window of opportunity and we are asking for your help to find a cure for this horrible disease by funding this research. Thank you from the Smith family.
 
All donations are tax deductible and will benefit The Charlotte & Gwenyth Gray Foundation and their mission to cure Batten disease.

DONATE

To This Fundraiser

$766,221

MONEY RAISED
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  • Anonymous

    $250

  • Peggy d

    $50

  • Anonymous

    $30

  • Anonymous

    $30

  • Jim Judd and Chloe Costello

    $10

  • Lilly slender

    $60

  • Lilly slender

    $50

  • George and Rachel Wood / mary Ellen's raffle for travel trailer

    $100

  • Elizabeth Evans

    $100

  • Kathleen & Mondo

    $100

  • Greg and Barbara Robinson

    $100

  • Margaret Gorman

    $50

  • Charlotte MacDonald

    $25

  • Sandy & Peggy Townsley

    $25

  • 4 Nikki trail /mary ellens raffle 4 beautiful home

    $50

  • DeDe Linzy

    $25

  • Kathryn

    $20

  • Kitty

    $50

  • John stewart

    $100

  • Ted Townsley

    $500

  • Jane evans

    $50

  • Praymore

    $50

  • May, June July Checks Offline

    $6,127

  • Smith Family & Friends via NFG - May 18-July31

    $60,000

  • Irene baker

    $10

  • Elizabeth evans

    $20

  • Margaret Gorman

    $50

  • Mary Bess Wilson

    $50

  • Esther McDonald

    $25

  • Anonymous

    $50

  • James McDonald

    $25

  • Cathy mcmillan

    $100

  • John and nancy donohue

    $100

  • Madeline Scott

    $25

  • The Stanley Family

    $50

  • Rose Townsley

    $50

  • Johnny Mary Smith

    $100

  • Catherine jean

    $100

  • James. Trail

    $50

  • George wood

    $50

  • Kitty Swartz

    $50

  • Jane Macdonald

     

  • Anonymous

    $10

  • John n Nancy Donohue

    $50

  • Ann Marie

    $50

  • elizabeth squires

    $25

  • Paris la bella

    $15

  • Henry and Ashley Stanley

    $50

  • Anonymous

    $10

  • Bernice Young

    $25

  • suzziejane cooper

    $10

  • Victoria young

    $100

  • Chad and Isabella Lee

    $50

  • Nora shaw

    $50

  • Matthew & Rosa Stanley

     

  • Betty davis

    $25

  • Heather Orlando

    $10

  • For aunt maggie mcmillan

    $50

  • Margaret Gorman

    $50

  • John n Nancy Donohue

    $50

  • John n Nancy Donohue

    $50

  • John n Nancy Donohue

    $50

  • Davina Macdonald

    $25

  • Smith Family & Friends (Aug 1-15)

    $28,000

  • Anonymous

    $10

  • John n Nancy Donohue

    $200

  • Margie n Bob white

    $50

  • Elizabeth evans

    $200

  • Rachel Samson

    $50

  • Margaret Gorman

    $50

  • Kathryn corrigan

    $50

  • Debbie Ann Stanley

     

  • For Eddie Lovell 5k

    $100

  • Margaret Gorman

    $100

  • George wood 4 d day raffle

    $100

  • Complete Restoration Healing

     

  • Irene mcmillan

    $20

  • Anonymous

    $20

  • Mary smith

    $20

  • Anonymous

    $10

  • George wood james raffle

    $50

  • Margaret Gorman

    $10

  • Margaret

    $20

  • 4 Janes raffle in honor of Mary Smith

    $50

  • Anonymous

    $150

  • Mary Dougherty shaw

    $50

  • Mary mac

    $25

  • Jessie Mcmillan

    $100

  • Beth an Howie

    $100

  • For jane Mcdonalds raffle 4 Tommie Williamson winners from praymore

    $100

  • Jane McDonald's raffle from praymore in honor of Mary Smith

    $100

  • Elizabeth evans

    $20

  • Elizabeth evans

    $30

  • Elizabeth evans

    $25

  • Jane evans

    $50

  • Smith Family & Friends (Aug 16 - Sept 6)

    $37,000

  • Elizabeth evans

    $40

  • Margaret Gorman

    $20

  • Elizabeth Evans

    $20

  • Elizabeth Evans

    $100

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Fundraise for this Campaign

The Team: $766,221 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Jeanne Ford

Amount Raised

$8,415

Fundraiser Title

Pray More

Amount Raised

$4,195

Fundraiser Title

Alex Stewart

Amount Raised

$4,115

Fundraiser Title

Elizabeth Evans

Amount Raised

$2,025

Fundraiser Title

Rachel Margaret Ann

Amount Raised

$1,620

Fundraiser Title

Brenda Stanley

Amount Raised

$1,435

Fundraiser Title

Jane Corrigan

Amount Raised

$1,190

Donor Comments

Elizabeth Evans

Elizabeth Evans

DONATION: $100

Maryann and lada raffle 5 months ago

Elizabeth Evans

Elizabeth Evans

DONATION: $20

Bling and beauty raffle 6 months ago

Margaret Gorman

Margaret Gorman

DONATION: $20

6 months ago

Elizabeth evans

Elizabeth evans

DONATION: $40

Sonyas sassy designs raffle 6 months ago

Smith Family & Friends (Aug 16 - Sept 6)

Smith Family & Friends (Aug 16 - Sept 6)

DONATION: $37,000

7 months ago

Jane evans

Jane evans

DONATION: $50

Smith kids 7 months ago

Elizabeth evans

Elizabeth evans

DONATION: $25

Louie Raffle 7 months ago

Elizabeth evans

Elizabeth evans

DONATION: $30

Bling and beauty raffle 7 months ago

Elizabeth evans

Elizabeth evans

DONATION: $20

Louis Vuitton raffle 7 months ago

Jane McDonald's raffle from  praymore  in honor of Mary Smith

Jane McDonald's raffle from praymore in honor of Mary Smith

DONATION: $100

Jane McDonald's raffle from praymore in honor of Mary Smith 7 months ago