Sophia's Medical Journey
Organized by: Dana Williams
EVENT DATE Aug 11, 2015
UPDATE 8/15: PRAISE GOD!!!! After 1,916 miles and a busy week of treatments Sophia is home resting and recuperating with family. Please continue to pray for a full recovery! Check back with us for updates on Sophia and our fundraising efforts. Thanks to so many of you for being a part of Sophia's journey!!
UPDATE: 8/12 Sophie had an eventful day of treatment today after a full medical consult yesterday. They arrived this morning at 6:00 am and it was a long day of treatment, but Sophia is doing excellent. By 1:30 local she was eating some lunch at Cheesecake Factory and released to start over again tomorrow at 7:00am. See the added pic for post-treatment smiles.
Sophia is such a brave girl. We're praying for rest, a good treatment tomorrow, and a successful recovery period in the days ahead! We are all thankful how far God has brought her and expecting his blessing through this treatment!
Sophia's PANDAS Story:
In October of last year, Sophia started experiencing chronic illness with a diagnosis of mono, reoccurring bouts of strep, and continual high fevers missing over 50 days of school and the joy of the typical life of a 10 year old. These illnesses left her feeling not at all herself, at times unable to control her emotions or behaviors, and she and her family feeling quite discouraged. Symptoms interrupted her regular activities, school work, and home life. After many months and tests, she was diagnosed with both Lymes disease and Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS).
The often-misdiagnosed disorder produces antibodies that attack the brain, triggering sudden-onset behavioral disorders such as tics and obsessive compulsive disorder. One part of the brain affected in PANDAS is the Basal Ganglia, which is believed to be responsible for movement and behavior. Symptoms include: separation anxiety - not wanting to be in a different room in the house from parents, mood changes, sleep disturbance, fine/gross motor changes, and joint pains. When dietary OCD behaviors manifest, doctors are concerned that the children like Sophia are more likely to develop severe eating disorders including anorexia.
Dr. Justice in Atlanta has referred the Olsen's to Dr. Kovacevic in Hinsdale, Illinois for a more invasive specialty treatment called IVIG, intravenous immunoglobulin. The procedure involves infusions of donor plasma to prompt the immune system back into normalcy.
Her treatment is scheduled for August 11-13 in Illinois. The Olsens’ insurance company will not confirm coverage for this procedure prior to the trip, but we know Sophia needs it and most insurance companies do not cover it. So, we are joining with the Olsens to raise financial support for their travel expenses and medical costs along with the large ongoing community of prayer that has followed Sophia these many months. Please pray first for a successful treatment, and consider donating to the medical costs for this much needed treatment that we prayerfully expect will return Sophia to herself and her family.
For more information about PANDAS, you can read online at: