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Katey Miller's Fundraiser:

Sophie's Challenge

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Katey's Photo

BENEFITING: DUP 15Q ALLIANCE

Katey Miller

THE STORY:

Sophie is our little angel with a rare chromosome mutation. They have been working hard to fund research to help the lives of children with this disorder, and we thought it was our turn to do our part. Dup15q is the organization we are raising money for and every penny helps tremendously.

During the holiday season many people look for causes to donate their hard-earned money towards.  I work so hard to give my Sophie a better life every day, but there is such a bigger picture that she is a large part of.  I thought this year, and maybe every year, I could take a little extra time and try to not only bring awareness, but a little help to her "cause".


Dup15q Alliance is an organization set up for families like mine.  We have a child with Isodicentric Chromosome 15.  It is a rare gene mutation, not passed on from the parents but an act of God.  And she is a little Angel.  She is funny and happy and loving and a challenge. "They" said she might never talk or walk... and she loves to prove "them" wrong!  She is starting to talk with routine words.  She is walking... well, running most of the time.  She loves us... and her dog.  She is really beautiful, but her life is a struggle.  Eating is difficult as her tongue doesn't move in symmetry and her core is too weak to hold her up.  She wakes 6-7 times a night and needs to be held tightly to fall back asleep as her muscles are spasming for an unknown reason.  She wants to be held most of the time as her muscles are just not strong enough to hold her up all the time and it is a lot of work for her.  She had seizures - infantile spasms, that essentially made her comatose from 6 months to a year and a half where she couldn't eat and barely could open her eyes.  She loves us so much.  She is funny and really just beautiful.

 There are others like her, spread throughout the world, but there is no giant population to bring awareness, or large walks, silent auctions, or telethons.  Currently there are 716 registered with this chromosome abnormality and from the registry it gives us an idea of what to expect, or commonalities between them.  There are some in their early adulthood, and life is fairly difficult to navigate for most to all of them and not one lives without 24 hour assistance.  


This organization is doing amazing things to not only bring the families support and together… but more importantly, they are funding research to discover more about what this mutation does and how we can maybe better treat it in the future.  They have done some pretty amazing things so far and there is so much more they can do… if they can get the support.  Like I said, there is no major telethon or giant money maker.  So I figured this was one way to help my Sophie out a little more… and hopefully help the generations to follow.


So I started Sophie’s Challenge… So if you have an extra dollar or two, I would just ask you to consider this holiday season donating it to Dup15q Alliance.  It is so greatly appreciated!  And if you are a little tight for funds, thank you for your consideration, and please continue to send Sophie prayers, and tell your friends! 

DONATE

To This Fundraiser

$3,335

MONEY RAISED
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  • Abby Bonnet

    $50

  • Katie Salentine

    $50

  • Bob & Gail Salm

    $100

  • Jack & Marian Vande hey

    $25

  • Keith and Wendi Doszak and family

    $25

  • Lou & Jo Horn

    $50

  • Dave & Nikki Rust

    $100

  • Ben & Allison Salm

    $50

  • Sherry & Pat Jasper

    $10

  • Bill & Doris Jansen Family

    $400

  • Gary & Yvonne Miller

    $100

  • Bethany and Dennis

    $50

  • BethAnn Riewestahl

    $50

  • Ron and Patty Marx

    $100

  • Anonymous

    $25

  • Rod & Linda

    $50

  • Katie & Dave Nestler

    $15

  • Ken & Paula Schwebke

    $100

  • Andrea & Brian Hanson

    $50

  • Ken & Jan VandeHey

    $100

  • Dave & Linda Schlegelmilch

    $100

  • The Boldt Company

    $500

  • Ron and Dutch Theissen

    $25

  • Pat & Rose Loughrin

    $75

  • Eric & Susan

    $25

  • Dick & Cathy Bauer Family

    $100

  • Katey Miller - and various donors

    $500

  • Sam, Kate, Jack and Abby O'Connor

    $50

  • Nick and Christi Salm

    $50

  • Glenn & Anne Higgins

     

  • Bri, Abby's, bobby

    $50

  • Kevin and Kelly Zwieschowski

    $50

  • Nate

    $60

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334% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $3,335 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Nate

Nate

DONATION: $60

Kate, I have been praying for a fundraiser to donate to and I honestly don't think I could find a better place to give some of my finances towards. I am so inspired by the care you give your patients, I can't imagine the tremendous amount of love you give your daughter. I want you to know you are a true blessing to me and I want you to know you and what I know of your family are incredible people! Keep spreading the love God has for all of us, especially to the precious daughter you have! 4 years ago

Kevin and Kelly Zwieschowski

Kevin and Kelly Zwieschowski

DONATION: $50

4 years ago

Bri, Abby's, bobby

Bri, Abby's, bobby

DONATION: $50

4 years ago

Glenn & Anne Higgins

Glenn & Anne Higgins

4 years ago

Nick and Christi Salm

Nick and Christi Salm

DONATION: $50

4 years ago

Sam, Kate, Jack and Abby O'Connor

Sam, Kate, Jack and Abby O'Connor

DONATION: $50

4 years ago

Katey Miller - and various donors

Katey Miller - and various donors

DONATION: $500

THANK YOU THANK YOU THANK YOU to EVERYONE! We are so blessed and amazed at the support! 4 years ago

Dick & Cathy Bauer Family

Dick & Cathy Bauer Family

DONATION: $100

4 years ago

Eric & Susan

Eric & Susan

DONATION: $25

4 years ago

Pat & Rose Loughrin

Pat & Rose Loughrin

DONATION: $75

4 years ago