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Jeremy and Taylor Singh's Fundraiser:

Spencer's Sprinters!

Jeremy and Taylor's Photo
Jeremy and Taylor Singh

THE STORY:

LexFUN! and the Lexington Newcomers Club have joined forces to become a team: Spencer’s Sprinters! Our LexFUN! and Lexington Newcomer Communities adore the Smith family, we’re lucky and proud to have them as members, and we want to do all that we can for little Spencer! Like all toddlers, Spencer loves to splash in the pool with his daddy, dance in the yard with his mommy, and pet every puppy dog he can get my hands on. But unlike most boys and girls, he's battling against MPS-III, commonly known as Sanfilippo Syndrome. Sanfilippo Syndrome is a genetic neurological disorder that can be easily understood as the childhood Alzheimer's. Both are a death sentence, but where Alzheimer’s strikes people toward the end of their lives, Sanfilippo attacks kids just as they have begun to learn to walk and talk. Also unlike Alzheimer’s, Sanfilippo is considered an "orphan disease," which means there isn’t enough incentive for drug companies to pursue a cure. There are several teams of researchers around the world who are studying ways to treat Sanfilippo kids like Spencer who lack an enzyme that breaks down complex chains of glucose. Sadly, some of the treatments already put through clinical trials have not panned out. What this means is that without more awareness of this terrible disease, and crucially, the money to fund more research, many kids with Sanfilippo will die as their peers head off to high school. We don't want Spencer to be one of them. We don't want Spencer to stop being able to walk. Or talk. And eventually, to swallow. All of which could begin happening, progressively, as early as the year he should be entering kindergarten. He wants to live. Join us in helping Spencer in his fight! DONATE to Spencer’s Sprinters TODAY!

$18,826

MONEY RAISED
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  • Linda Kastner

     

  • cary coen

    $50

  • Stephanie Cunningham

    $100

  • Nick & Jackie Walker

    $100

  • Dawn Penniman

    $25

  • Jennie Perkins

     

  • Diana C.

    $100

  • Chris Queally

    $25

  • Bruce Baird

    $100

  • Brawner Family

     

  • The Methot Family

    $150

  • Fran Detweiler

     

  • Val O’Hearn

    $150

  • Bill and Mary Carmel Wolf

    $100

  • Anonymous

     

  • Family Centeno

    $100

  • Margie Feinberg

    $50

  • Meredith L. Eaton

     

  • The Donahues

     

  • Jake & Lexi Nichols

    $300

  • The Barclay Family

    $40

  • Robert Burbidge

    $50

  • Alexandra Lane (Randy and Joshua too!)

    $50

  • Anonymous

    $250

  • Katie and David Walter

    $100

  • Leah Black

    $50

  • Anonymous

    $50

  • Jordan Smith

    $25

  • Ericson Family

    $50

  • Morgan/Walcott Family

    $100

  • Anonymous

    $25

  • Danny and Karen

    $100

  • Mari Hackett

    $50

  • The Pardoe Family

    $50

  • Audra Myerberg

    $25

  • The Pardoe Family

    $50

  • Melissa & Rob

    $250

  • Sean Sullivan

    $25

  • Bergeron Family

    $100

  • Anonymous

    $50

  • Katherine Winingham

    $25

  • Anonymous

    $100

  • Joe

    $75

  • James and Suzanne

     

  • Donna and Deb

     

  • Ron and Nancy

    $50

  • Gallagher Chiropractic and Medical Wellness

    $100

  • Pam

     

  • Anonymous

    $60

  • Spencer

    $50

  • Anonymous

     

  • Heidi Mann

    $25

  • Christopher Barone

    $100

  • Anonymous

    $25

  • Morriah Horani

    $25

  • Lindsay J. Webb

    $10

  • Kendra & Pat

     

  • Sally Hinman

    $250

  • Beth and John

     

  • Jon

     

  • Brendan Lawler

    $25

  • Patricia Jacotin

    $100

  • The Cospolich Family

     

  • Mary and Jack

    $50

  • Ludwig Family

    $100

  • Delmolino/Scatterday Family

     

  • Josh

     

  • MARGARET ACKERMAN

     

  • Dilip and Jayashree

     

  • Giselle Vencer and Alvin Strong

     

  • Preeya Mbekeani

    $25

  • Dahlia, Daes & Joshua

     

  • Greg Sheehan

    $100

  • Bob & Fran Ludwig

    $100

  • Lindsay Stradley

    $25

  • The Doyle Family

    $110

  • Mary Brown

    $25

  • Heather

    $25

  • Deborah Steinberg

    $18

  • Anonymous

    $75

  • Nathan & Alli Smith

    $250

  • Margot Prendergast

    $50

  • Shari Meffert

    $50

  • Ryan Family

    $75

  • Emily Barr

    $20

  • Parker Mundt

    $20

  • Sunnie and Peter Hellman

    $100

  • Iain P G Bell

    $50

  • Kevin Fox

    $50

  • Ronald Tashjian

    $50

  • The Williams'

     

  • Jay Kasparian

    $25

  • Anonymous

    $20

  • Toni Daugherty

     

  • Noelle and Angelo

    $50

  • Linda Hull

    $50

  • Donkey and family

    $50

  • The Brekne Family

    $100

  • Erving Paper Mills

    $250

  • Peter and Renee Picardi

    $25

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126% Raised of$15,000 Goal

Fundraise for this Campaign

The Team: $18,826 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Nathan Smith

Amount Raised

$3,473

 

116% Raised of$3,000 Goal

Fundraiser Title

Allison Smith

Amount Raised

$3,095

 

124% Raised of$2,500 Goal

Fundraiser Title

Jeremy and Taylor Singh

Amount Raised

$790

 

5% Raised of$15,000 Goal

Fundraiser Title

Diane Leinen

Amount Raised

$760

Fundraiser Title

James Leitch

Amount Raised

$695

Fundraiser Title

Christie Leitch

Amount Raised

$600

 

240% Raised of$250 Goal

Fundraiser Title

Peg Josh Smith

Amount Raised

$555

 

56% Raised of$1,000 Goal

Fundraiser Title

Courtney Waite

Amount Raised

$505

Donor Comments

Peter and Renee Picardi

Peter and Renee Picardi

DONATION: $25

2 years ago

Erving Paper Mills

Erving Paper Mills

DONATION: $250

2 years ago

The Brekne Family

The Brekne Family

DONATION: $100

Sending our love! 2 years ago

Donkey and family

Donkey and family

DONATION: $50

2 years ago

Linda Hull

Linda Hull

DONATION: $50

2 years ago

Noelle and Angelo

Noelle and Angelo

DONATION: $50

2 years ago

Toni Daugherty

Toni Daugherty

We love Spencer! 2 years ago

Anonymous

ANONYMOUS

DONATION: $20

2 years ago

Jay Kasparian

Jay Kasparian

DONATION: $25

2 years ago

The Williams'

The Williams'

Good Luck x 2 years ago