BENEFITING: Spina Bifida Association of America
ORGANIZER: Spina Bifida Association of America
On November 5, 2017 I'm going to be hitting the streets of New York City and running my first full marathon. I've been lucky enough to become a member of Team Spina Bifida and will be fundraising my run in my nephew, Peyton's, honor.
There is a good chance that if you've found yourself reading this, our paths have crossed somewhere along our journey and you undoubtedly know a thing or two about Peyton, since he's someone I speak of often. Peyton was born on June 25, 2008- a day that would change the lives of so many. His parents were unaware of his diagnosis until his birth where they learned he had the most serious form of Spina Bifida, Myelomeningocele. Simply put, his spinal cord and spinal canal did not properly form. Peyton was immediately transported to another hospital where he would undergo several surgeries to close the opening in his back and shortly after he was born, a shunt was placed in his brain to assist his body in filtering his cerebral spinal fluid. The early days of Peyton's life left his parents and all of us that loved them filled with fear and so much uncertainty. The years to follow came with a plethora of emotions but none that have overshadowed the raw love we get to experience while we watch him grow.
Peyton's diagnosis has left him unable to walk, use the bathroom without medical intervention, and enjoy the same regular joys that children deserve to experience. Now make no mistake, Peyton has grown to be an incredibly happy 9 year old little boy who is loved beyond measure. But there is no denying his disability and the effects it has had on our family. He has changed us forever.
So, here we are. I am running for Peyton. 26.2 miles in his honor. He has taught me more in his 9 years than I ever thought possible and I'll use his lessons in perseverance, humility, kindness, and how to experience pure joy to get me to the finish line, where he will be waiting for me to say my favorite words, "Hi Aunt Jaymie!"
In the coming months I will be training hard to prepare my body for the New York City Marathon and I'll be working tirelessly to reach my fundraising goal of $3,000 for Team Spina Bifida with all funds being donated directly to The Spina Bifida Association. No gift is too small and I am so thankful that you've taken the time to read this. Please share with your family and friends if you're inclined.