NEW Holiday Campaign "I See" A Need To #CureSanfilippo
November 22, 2016
BENEFITING: CURE SANFILIPPO FOUNDATION
Meet our son Carter. He is a four year old little boy who loves sharks, and sea creatures. He enjoys swimming, going to the beach, and playing tag with his older sister Sophia.
Carter was diagnosed with Sanfilippo syndrome this past May. If you have not heard of Sanfilippo Syndrome, you are not alone. Basically, Sanfilippo syndrome is a child's version of Alzheimer's. It is is a rapid degenerative and terminal disease in children. By his next birthday, Carter will loose almost all of his speech and language. He will then loose his fine motor skills, his mobility and ability to walk and during all of this he may develop seizures and painful movement disorders until his life will be taken from him more than likely in his mid teens. There is currently no cure, but there are clinical trials, testing, and hopeful treatments are starting.
We created this challenge to help raise money and awareness for this rare and fatal disease in children. We are hopeful that with your help, we can find a cure for all types of Sanfilippo Syndrome and give these children a chance at life!
All donations will be going to the Cure Sanfilippo foundation and used to fund more options for children in clinical trials. Also, all donations are tax-deductible!!!!
Over the next year it is our team goal to raise 5 million dollars. Why 5 million dollars in a year? Because everyday that goes by is another day that these children become closer to loosing major skills you and I may take for granted and a day closer to their untimely deaths. With this money we will be able to get more research and trials up and running to help find a cure for Sanfilippo as soon as possible. This is urgent and truly is a race against time to give all of these children a chance at life!
There are many more children that need treatment than there are spots in trials. Please, help us give Carter and many other kids a chance at life, we don't want to lose our baby boy.
- Grab a friend, partner, child, whoever you can.
- Play one game of Rock, Paper, Scissors
- The player who wins gets to splash the other player with water from a cup, hose, bucket…use your imagination the sky is the limit!! The looser is asked to donate at least $10 on Splash4Life.com. Please nominate at least 2-3 other people and tag your videos with #splash4Life.
Please post your video's on social media with #Splash4Life challenge and most importantly tag & challenge 3 friends.
Everyday these children are at risk of loosing major motor and developmental skills they already have acquired and a day closer to their untimely deaths. Please, help us and be apart of finding a cure for these children!
For more information on this urgent cause to cure Sanfilippo Syndrome, please visit www.CureSFF.org
Sometimes it's ok to be a follower... To follow Carter's Story please find his information below.
- Facbook: Facebook.com/carterschallenge
- Instagram: @carterschallenge
- Twitter: @carterchallenge
- Snapchat: CarterChallenge
How it Works
Grab a friend, partner, child, whoever you can.
Play one game of Rock, Paper, Scissors
The winner gets to splash the other player with water. The loser is then asked to donate here. Make sure to post your videos on social media using #Splash4Life!