STANDING UP to POTS
Organized by: Selena Williams
Just got approved to do a 5k race event! Thank you for the donations to help get this started! I have never done anything like this but I have amazing mentors helping me!
July 12, 2016
My name is Selena Rae-Ann Williams. I am 20 years old from Kansas City, MO. I was diagnosed with a postural orthostatic tachycardia syndrome also known as POTS on March 7, 2016 but I've had it since 2013 it just gotten worse. I've been millions of doctors who try to say it's in my head or I have anxiety or I have syncope. But my real journey changed on March 7th a unstoppable pain in my stomach which led to dizzy spells, seizures, headaches,shortness of breath, cold feet and legs, blood pooling in my feet, swelling of ankle and feet when I only stand on them for maybe 30 to 45 mins, weakness in legs and worst of them all randomly fainting. Before all this had happened I was a typical outgoing girl throughout my whole like I played many different sports cheered and all. Until the day everything drastically had to change. A lot of people do not know a whole lot of pots not even a lot of doctors. Some of the doctors ask you what it is or looks it up on google. When they fill you medication they basically guess and hope it works. 2 out of five I had a Algeric reaction. Let me explain a little about my daily life in the morning I take 2 medications, then take a shower sometimes I literally have to sit because I get lightheaded immediately and somebody whether my boyfriend or mom has to help shower me because sometimes I literally can't do it on my own then in the afternoon i take 1 salt pill and drink tons of Gatorade so my sodium level does become low. My appetite is little to none at all sometimes I have to be forced to eat cause I literally won't eat then same for bedtime. Then everyone says you look normal but yet I get breathless walking up the stairs or even just sitting to standing it feels like I just ran a 5k race. I am far from normal and people judge you cause when you go to stores you have to get a motor wheelchair cause you look normal. So doctor after Doctor disappointment after disappointment. Getting 0 answers time to time test after test. You start getting frustrated so I decided that I wanna raise our awareness by starting different events to raise money for charity and helping as much as I can. So I would really appreciate if people shared this story and every penny counts. Thanks so much in advanced.