BENEFITING: Standing Up To Pots Inc
ORGANIZER: Standing Up To Pots Inc
I founded Standing Up to POTS, a 501(c)(3) charity, in 2014 as my daughter’s childhood was being stolen by postural orthostatic tachycardia syndrome (POTS). After a bout with mononucleosis at age 10, my daughter started down a slippery slope into extreme fatigue, hot flashes, abdominal pain, neuropathic leg pain, brain fog, and sensitivity to touch. She went from a healthy, vivacious, outgoing child to one living in a state of chronic illness virtually overnight. She was finally received a diagnosis after seeing nine specialists, but adequate treatment has been elusive.
I'm really excited to be unveiling a new Standing Up to POTS Research Fund. 100% of the donations to this fund will go to physicians or other researchers who are working directly with POTS patients. This fund will focus on projects that will improve the quality of life for people with POTS now. We need more effective treatments and better diagnosis of comorbid disorders in order to get POTS patients back to a more normal life. This is so important for our family members currently suffering from POTS!
Please consider donating to this wonderful cause. Your donation is tax deductible, and will help improve the quality of life of people with POTS. Any donation, large or small, will be gratefully accepted.