On Oct. 5, the Stilling’s are joining once again with families from around the world to fight Juvenile Myositis!
Our daughter Haddie became very ill in April 2012, just after her 4th birthday. Normally a happy, funny, energetic little girl, Haddie first developed a severe rash and within 3 weeks she became so weak that she was unable to stand from sitting, climb stairs, get in and out of bed and she could barely walk on her own. She experienced dysphonia because of weakness in her vocal cords. Haddie no longer had the muscle strength to lift her head or catch herself if she fell. It was a terrifying time for our family and doctors were perplexed.
Haddie was sent to Ann & Robert H. Lurie Children’s Hospital where she was diagnosed with Juvenile Dermatomyositis.
Juvenile Myositis is a life-threatening and incurable disease affecting 17,000 children in the U.S. alone. It causes a child's own immune system to attack healthy tissue and cells, which can cause pain, weakness, inability to walk, disfigurement, organ failure and can even lead to death. Juvenile Myositis can affect virtually any system of the body, the heart, lungs, skin, muscles, and more.
After many hospital stays, doctor visits, an aggressive treatment protocol using IV steroids and various other intensive drugs, and months of physical therapy, we are SO thankful and blessed to say that two years later, Haddie is finally off all medication and considered to be in remission…but she is not cured.
Moreover, many kids continue to suffer the debilitating effects of JM. We have lost 3 of those children to JM this year alone. And even when JM kids go into remission, there is always a chance it could rear its ugly head at any time – especially because it is known that too much sun exposure or a bad infection can set it off again. This is why for all the innocent children suffering now, for those who haven't yet been diagnosed, and for those in remission, all who are still living their lives literally "hiding" from the sun, we must find a CURE!
Our family is confident that without the Cure JM Research Center at Lurie Children's and the early and quick diagnosis her pediatric rheumatologist made, Haddie would not be where she is today.
So please help make a difference! Please donate today and help find a cure.
Every dollar makes a direct influence– well over 95% of donations go directly toward research or educational programs. Your generosity will help fund medical research studies, JM research centers in Chicago and Washington, D.C. and much, much more.
Our goal is to never let another child suffer from Juvenile Myositis. And with your help, we believe that goal is well within our reach!
Cure JM Foundation is a nonprofit organization dedicated to finding a cure for Juvenile Myositis (JM). Cure JM Foundation is the ONLY organization that solely supports Juvenile Myositis and is the largest charitable supporter of Juvenile Myositis research.