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Stephen Ackermann's Fundraiser:

Stephen Ackermann - NFE | 2016 TCS NYC Marathon

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BENEFITING: Children's Tumor Foundation

EVENT: NFE | 2016 TCS NYC Marathon

EVENT DATE: Nov 06, 2016

Stephen Ackermann

THE STORY:

The Children's Tumor Foundation's NF Endurance Team is running the 2016 TCS New York City Marathon to end NF through research. 

 

Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.

 

NF can appear in any family. NF occurs in 1 in 3000 births; is worldwide in distribution; affects both sexes equally; and has no particular racial, geographic or ethnic distribution. 

 

The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.

 

Our mission is to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.

 

There is currently no effective treatments nor a cure, but you can help!  Support our team today!

 

1. You can click on the DONATE button to contribute what you can on behalf of one of NF Endurance team members.

 

2. You can REGISTER to become join the team yourself and help us raise the much-needed funds and spread the word about this cause.

 

3. You can volunteer your time during race week and on race day to welcome, support and encourage our runners.

 

Please email us at nfendurance@ctf.org with any questions!

 

Thank you!

DONATE

To This Fundraiser

$4,120

MONEY RAISED
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  • Anonymous

    $50

  • Anonymous

    $100

  • Darryn Taylor

    $100

  • Anonymous

    $25

  • Alecia baucom-Ortiz

    $100

  • Christine Haupt

    $300

  • Luana Harris Scott - On Par Productions

    $500

  • Barbara Ricciardi

    $100

  • Anonymous

    $100

  • Deb Kemper

    $100

  • Awesome people from golf outing

    $1,000

  • Sharon R Carey

    $250

  • Karol Smith

    $50

  • Anonymous

     

  • Rita and Bill

    $100

  • Jim Sofranko

    $25

  • Lottery tree

    $50

  • Marge & Terry Momberger

     

  • Eileen Kroll

    $25

  • Jones Journey

    $25

  • Krisztina Soos-Kitsos

    $25

  • Sal

    $100

  • Starlite Motel

    $200

  • Christine Haupt

    $200

  • Allicia Clark

    $25

  • The Hack Attacks

    $50

  • Judy Burns

    $25

  • Stephen Ackermann

    $225

  • Debra Domack

    $20

  • David Hoffman

    $100

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Donor Comments

David Hoffman

David Hoffman

DONATION: $100

2 years ago

Debra Domack

Debra Domack

DONATION: $20

2 years ago

Stephen Ackermann

Stephen Ackermann

DONATION: $225

2 years ago

Judy Burns

Judy Burns

DONATION: $25

2 years ago

The Hack Attacks

The Hack Attacks

DONATION: $50

2 years ago

Allicia Clark

Allicia Clark

DONATION: $25

2 years ago

Christine Haupt

Christine Haupt

DONATION: $200

2 years ago

Starlite Motel

Starlite Motel

DONATION: $200

To good health and enjoying the great outdoors of the Catskills, NY 2 years ago

Sal

Sal

DONATION: $100

Thank you. It was nice working with you. 2 years ago

Krisztina Soos-Kitsos

Krisztina Soos-Kitsos

DONATION: $25

2 years ago