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Bryan Adams' Fundraiser:

Stop CMV. For Leo and all!

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BENEFITING: NATIONAL CMV FOUNDATION INC

ORGANIZER: Zachary

Bryan Adams

THE STORY:

Zachary Rigoni wrote -

June is CMV Awareness Month. What is CMV? Given that only 9% of women have heard of it, most of you likely not are aware of the virus. My wife and I were also in that camp, even though congenital CMV affects approximately 30,000 children annually, making it one of the most common congenital viral infections in the United States. CMV stands for Cytomegalovirus, and congenital CMV infection is arguably the most common preventable cause of neonatal disability in the United States. On May 20, 2014, our son, Leo, was born with CMV. He was born small, at 5 lb 5 oz, but appeared to be in otherwise great health. But it didn't take long for symptoms of this virus to rear its ugly head as he did not pass his newborn hearing screen. As the months passed, other developmental delays followed, both physically and cognitively. Leading up to his second birthday, doctors struggled to explain the cause. And along the way, some of the misdiagnoses were truly heartbreaking, if only temporary. Finally, on almost the exact days he took his first steps, it was confirmed that he had contracted congenital CMV. Following countless hospital visits and thousands of hours of therapy, we still aren't sure what exactly the future holds for Leo. He has hearing and vision impairment, trouble learning and may never have coordinated movements. But I can promise you this: he will never, ever, give up trying. Inspiration comes in various forms and nothing has touched our minds, hearts and souls like this beautiful boy. I will never claim that Leo is lucky, but other children born with this infection are far worse off. Even though our little angel is still non-verbal, we want to give him a voice by spreading the word on CMV, and the ways to help prevent it. So we are holding a run in Central Park on Saturday, June 24th, at 2:00pm ET to help spread CMV awareness and do something simple that victims of CMV would cherish: walking and/or running. We will be pushing Leo and his big sister in their stroller during the run. Details on the event are underway and will be sent along when available. If you choose to do so, please feel free to donate to this fundraiser as all of the proceeds go to the National CMV Foundation (a qualified 501 (c)(3) tax-exempt organization). CMV is preventable, its awareness is severely lacking and this needs to change. Let's all stop CMV. Best Regards, Zack and Karen Rigoni

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$50

MONEY RAISED
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The Team: $13,255 TOTAL RAISED SO FAR

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Fundraiser Title

Zachary Rigoni

Amount Raised

$13,205

 

132% Raised of$10,000 Goal

Fundraiser Title

Bryan Adams

Amount Raised

$50

Donor Comments

Bryan Adams

Bryan Adams

For my lil dude, Leo 2 years ago