Strength for Layla
Organized by: Amy Blanton
Thank you to everyone who supported our fundraiser for Layla's therapy!! With the online crowdrise fundraiser and donations hand-delivered we reached $4,904!!! That is INSANE. We are just shy of 250% of our goal! You all have blessed Layla and our family immeasurably and we thank you!!
Layla Blanton is a 5 year old girl challenged with a neurological disorder called Lissencephaly. Basically, her brain is smooth instead of wrinkled. With her neurological condition, Layla has potential for growth and learning, but her condition also makes this incredibly difficult due to Epilepsy. At present, she cannot walk or talk and her seizures have been exhausting her little body.
When Layla was 18 months old, the Blantons used a special therapy called Anat Baniel Method (http://www.anatbanielmethod.com/). With this, she was sitting more independently, feeding herself milk with a sippy-cup unassisted, and making more word approximations like "ba" for "ball" ;"da" for "dad" and "up-da" for "up/down" as well as a very clear "all done”. Because of the cost of this therapy, the Blantons had to discontinue treatment. Today, Layla's condition has caused her to regress. She is not speaking at all, is not able to sit independently, is not feeding herself, and has lost much of her ability to play. Yet, she is clearly aware. Layla offers lots of kisses when she is happy, she shows very clear emotional responses, but she is not thriving as they once saw her thrive.
In the case of people affected by Lissencephaly, less than 200,000 cases in the U.S., research is limited and as it is so rare and has no cure, resources are limited. As a result, some of the therapy that has been shown to stimulate learning and help with motor function is not covered by insurance. Mike and Amy Blanton have never asked for financial help. He works at General Motors and is continuing his education at a local college. Amy works part time from home. They have a second daughter who is younger than Layla. They know they don’t have any guarantees on her life expectancy, but they are caring for a living miracle-daughter and if we can help her, we may be able to help others.
It is our goal to raise $2000 which will cover the cost of the therapy sessions scheduled for this summer. We ask that you stay tuned for an event at the end of May in which we will wrap up our fundraiser with a fun and active celebration!