BENEFITING: Pulmonary Hypertension Association Inc
Susie Sheldon wrote -Hi my name is Susie, I am a survivor of Pulmonary Hypertension. I was diagnosed with Pulmonary Hypertension in April 2006, when I found out I had this disease I thought my life was over. I was in denial, I didn't want to believe it, I didn't know what I was going to. My husband & I had 2 teenagers in high school, we just bought our first home, we both had good jobs & now we are faced with me being sick with a disease that there is no cure for. My doctor made me quit my job right after he diagnosed me, because I was that sick, without my income we ended up losing our new home & having to move. My kids didn't really understand at first, one day they had a mom who worked, took care of the house, went to baseball/softball games & took them & their friends places but now their mom can't do any of that. But it wasn't just my kids who didn't understand, my family, my husbands family and my close friends had a hard time understanding what it was I dealing with, I didn't even understand it. My doctor told me that with medications I might live 5 years so I started with the medicine, then he added another medicine & another. Then because of all the research over the period of ten year they kept finding new medications I was able to live my life the best I could with these medications. Then in November 2016 after years of being in & out of the hospital my doctor said it was time that I have a double lung transplant because the medications weren't working anymore & that was now my only choice. So on November 25th 2016, Thanksgiving Day, after being in the hospital for a month already I was transfer to UCLA where I was going to wait for my new lungs. I was in the ICU for 3 weeks, I had many ups & downs, I was on life support for 3 weeks, then on December 18, 2016 we got the call at 11pm they had found a donor, that was a match for me, so on December 19, 2016 at 12pm they took me down to surgery to give me my new lungs. It's been 8 months since my surgery & I am feeling great, my new lungs have been a blessing for & my family. I think about the doners family everyday & how grateful I am for giving me a 2nd chance at life, I am hoping that one day my family & I will be able to meet them to thank them in person. So this walk really means a lot to me because without all of the support from so many PHA groups & all the medications that they have found over the year, I would of never be able to get a double lung transplant. In 2016 my family & I did the walk at Angel Stadium of Anaheim but I was in a wheelchair now when I walk this year I will not be in a wheelchair, I will be walking with my family right beside me. So if you would like to join us & walk to show your support & to raise awareness of a disease that not many people are aware of, you can sign up under my team team name, Sue's Crew or let me know & I will sign you up, its free to register & to walk. If you can't walk but would like to donate to my team you can also do that under my team name. Thank you.