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Sara Tinajero-Alves' Fundraiser:

Support 22q13/Phelan-McDermid Syndrome

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Sara Tinajero-Alves via Crowdrise
January 12, 2012

Support 22q13 Help us raise funds and join the team!  See more

BENEFITING:

ORGANIZER: Laurie

EVENT DATE: Jan 09, 2012

Sara Tinajero-Alves

THE STORY:

Laurie Warren wrote -

We are very excited to introduce 3LLL.org.

We are a nonprofit organization.  Our goal is to raise awareness for 22q13 deletion syndrome. Funds from our online store, fundraising and events will help our families within the west coast region and throughout the country.

We would like our families to have the opportunity to attend 22q13/Phelan-McDermid Foundation events.

My granddaughter Isabelle was diagnosed/confirmed with 22q13 February 18, 2011 at the age 2 years and 2 months old. We are so grateful for Izzy! and, very fortunate for the early diagnoses. Isabelle has learned so much with help of her therapists and family. Being a grandparent of a 22q13 child can be very challenging at times and very rewarding.  

22q13 children have many needs and it can be expensive, my hope is to be able to help families.  Raising awareness is a start.            

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MONEY RAISED
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Fundraise for this Campaign

The Team: $3,065 TOTAL RAISED SO FAR

Fundraiser Title

Laurie Warren

Amount Raised

$3,065

 

38% Raised of $8,000 Goal

Fundraiser Title

Sara Tinajero-Alves

Amount Raised

$0

Donor Comments

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