Sara Tinajero-Alves via Crowdrise
January 12, 2012
EVENT DATE: Jan 09, 2012
Laurie Warren wrote -
We are very excited to introduce 3LLL.org.
We are a nonprofit organization. Our goal is to raise awareness for 22q13 deletion syndrome. Funds from our online store, fundraising and events will help our families within the west coast region and throughout the country.
We would like our families to have the opportunity to attend 22q13/Phelan-McDermid Foundation events.
My granddaughter Isabelle was diagnosed/confirmed with 22q13 February 18, 2011 at the age 2 years and 2 months old. We are so grateful for Izzy! and, very fortunate for the early diagnoses. Isabelle has learned so much with help of her therapists and family. Being a grandparent of a 22q13 child can be very challenging at times and very rewarding.
22q13 children have many needs and it can be expensive, my hope is to be able to help families. Raising awareness is a start.