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Melissa Soto's Fundraiser:

Supporting People with Prader Willi Syndrome 2017

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Walk and Roll
April 06, 2017

If you are near and dear to our hearts and would love to support Penelope in other ways, we'd love to have you join her team at a walk and roll  See more

BENEFITING: MAC PACT INC

Melissa Soto

THE STORY:

My daughter, Penelope was born with a rare, genetic syndrome that occurs in one out of every 15,000 births. Born with severe low-tone (floppy) and failing to thrive we began our journey of helping her to thrive. She is now a bubbly, determined, sassy three and a half year old that is reaching many milestones that we once were concerned about her making. I try to organize a fundraiser each year to help doctors and other experts out there to help us research ways to make living with this syndrome easier. Some of the difficulties include, but aren't limited to anxiety, skin picking, mood disorders, temperature regulation issues, scoliosis, learning difficulties, high pain tolerance,and most commonly known to others, an insatiable appetite. Doctors today are researching ways to help our loved ones live life FULL and INDEPENDENT. Without their help and expert guidance, mothers like me work to educate medical doctors, educators and general public we come in contact with about this syndrome and fight to help our children. Please consider donating today. It may mean that one day Penelope and others like her can live there lives feeling full emotionally and physically.

DONATE

To This Fundraiser

$860

MONEY RAISED
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  • Jeanne Jaquith

    $25

  • Blair Hoffman

    $50

  • Lori Pfeiffer

    $25

  • Carol Gold

    $25

  • Anne Stern

    $50

  • Nazaruk

    $50

  • Brigida fiorenza

    $100

  • Tina Marrone

    $25

  • Nancy Deneny

    $25

  • Deb Kurlander and Mary Mazzella

     

  • Kim& Ellen

    $100

  • Katherine DeBiase

    $25

  • Deb Udice

    $10

  • Lorraine Colombo

    $20

  • Janet Finnegan

    $20

  • Lisa Gray

    $25

  • Michelle Carozza

    $25

  • Bernadette Grassi

    $50

  • Tara Albaum

    $50

  • Grammy & Papa

     

  • Shannon McNamee

    $50

  • Laura F.

    $10

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29% Raised of $3,000 Goal

Fundraise for this Campaign

The Team: $860 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Laura F.

Laura F.

DONATION: $10

2 years ago

Shannon McNamee

Shannon McNamee

DONATION: $50

2 years ago

Grammy & Papa

Grammy & Papa

Keep up the amazing work! 2 years ago

Tara Albaum

Tara Albaum

DONATION: $50

2 years ago

Bernadette Grassi

Bernadette Grassi

DONATION: $50

Love you Penelope 2 years ago

Michelle Carozza

Michelle Carozza

DONATION: $25

2 years ago

Lisa Gray

Lisa Gray

DONATION: $25

Go Penelope go! 2 years ago

Janet Finnegan

Janet Finnegan

DONATION: $20

2 years ago

Lorraine Colombo

Lorraine Colombo

DONATION: $20

2 years ago

Deb Udice

Deb Udice

DONATION: $10

2 years ago