Organized by: Katherine Case
I'm setting up this page for my daughter's best friend, Sophie. We found out this week that Sophia has leukemia. Although, I feel quite powerless in most ways, this is one way I can support her and her family. I am including information written by Jess (Sophie's Mom) underneath.
My beautiful daughter Sophia has leukemia. She has cancer. I started worrying about her earlier in the week and decided to make an appointment to see her pediatrician, so Friday I took her in for her appointment and to have a full blood panel done. No less than an hour afterwards I got the call that no parent wants. She needed to be rushed to Maine Medical for a blood transfusion and that they were almost certain it was cancer. After more painful testing and a long long Friday night of platelet and blood transfusions they were right. They have told me that she has a 90% chance of beating this cancer, that it is very curable, and I have no doubt in my mind that she will. It's going to be a long long road ahead with two and a half years of chemotherapy treatment, but we will make it through this and she will come out on the other side happy and healthy. I am beyond sad, worried and heartbroken but I am so very hopeful. Soph has shown me her strength in these last few days that I'd be truly lucky to posses myself, she amazes me, she is only almost 3 and she is a fighter! We have been at the Barbara Bush Children's Hospital since Friday and will be here for about a week longer, with surgery this coming Monday to put in a port for her treatments and a spinal tap for testing and bone marrow as well, and then her chemotherapy starting after the surgery on Monday too.
Jess and her family are going to be under a lot of financial stress in addition to all the other stressors. Medical bills and gas bills from driving back and forth to the hospital will add up quickly. If you are able to donate, a little would go a long way in offsetting the financial burden Thank you so much!
UPDATE FROM JESS 2/3/16:
""So I now know behind the scenes of childhood leukemia for an almost 3 year old, and it's only just begun. it's been just 12 days and I know so much and have seen so much and I wish it all weren't so, not only for my daughter but for any other child or adult experiencing cancer. It is brutal, it is heartbreaking, it is the darkest my life has ever been. 12 days of living in the hospital with her instead of at our home, 12 days of constantly being interrupted day and night, 12 days of doctors and nurses coming at her to draw blood, take her vitals, give her medicines... she has grown weary of anyone that comes in her hospital room. at first she had an arm IV put in place, and 4 arm blood draws that were beyond tortuous for her, and then a few days later surgery for her port to be placed so arm IVs and arm blood draws wouldn't happen anymore. An IV pole follows here around everywhere, connected to her port... it's loud and obnoxious, annoying and restricting. She has had a bone marrow puncture and now 2 lumbar punctures since being here at the hospital... and she'll need a total of 20 to 25 lumbar punctures throughout her 2 1/2 year chemotherapy treatment... that's nearly one puncture every single month. she has been so sore from the bone marrow puncture that she hasn't walked for days despite taking pain medication for it. the medicines they are giving her for her therapy are all liquid form and they taste absolutely brutal... she has puked a few times after just a minute of taking them, and has had to repeat the doses right after throwing them up. most of these medicines will continue after her induction phase and will be everyday/twice a day for the next 2 1/2 years. I am responsible for getting all of these medications right and giving them to her when she goes home. She'll be going to treatments outside the home also where they will be accessing her port with a needle through her skin to give chemotherapy, as well as accessing her port in our home a few times a week for routine blood draws for lab work from a visiting nurse. We now know how dangerous a fever can be, because she caught one this past Friday while here in the hospital and needed blood and platelet transfusions and urgent care every hour of the day and night till she recovered, along with a 10 day course of antibiotics through her IV... so instead of going home today like we were supposed to, we'll be staying for another week and a half instead of being home... this will total about 20 or so days in the hospital since we first found out on the 22nd that she had cancer. A fever will put us back in the hospital down the road a few times and is to be expected so they say. I'm skipping over the lesser of the troubles we've faced, there are just so many. I find myself constantly grieving about my life with her before this all happened, I'm sad that I cannot go back to how it used to be no matter how badly I want to. She has just started losing her hair today, and I've just about lost my mind, it hurts so badly to see it go. I knew it would but nothing prepares a parent enough when it finally starts happening. The hospital beautician is going to come by to give her a haircut per my request to make the transition less traumatic for her, and myself too. The Barbara Bush Children's Hospital has been nothing but amazing, taking care of her and guiding me through this unbelievably painful process. Through all of the physical and emotional pain Sophia has endured so far, she has been doing so well and most of the time is the same playful and happy little girl I've always known. there have been times when she's not okay and just when I think she'll never come back, she returns again. She amazes me and is a tough little being who will make it through. In this dark time in my life she has been an unfaltering light, she gives me incredible hope. This is just the beginning, but I know there will be a beautiful ending... watching her grow as a resilient child who has overcome and endured an incredibly difficult time in her young life, a strong teenager, and a fierce adult"