Heather Huot via Crowdrise
April 19, 2012
BENEFITING: Immune Deficiency Foundation
EVENT DATE: Jun 30, 2012
After a year and a half of testing, Zak was diagnosed with a primary immunodefiency at the age of 3. With an immune system that cannot build an effective response to illness, Zak receives monthly IV treatments that give him the defenses that his body can't produce. This is a lifelong illness for Zak, but he is resilient!
April is Primary Immunodeficiency Awareness Month. Medical professionals are taught to look for horses when they hear hoofbeats, not zebras. Those with PIDD are the zebras. Please support Zak, and all the other zebras out there by making a donation. All proceeds go to the Immune Deficiency Foundation.
Primary immunodeficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. In fact, the World Health Organization recognizes over 150 of these diseases that affect thousands of children and adults in the United States. Years ago, a diagnosis of a primary immunodeficiency meant extremely compromised lives, not just for the patients but for their families as well. Today, with early diagnosis and appropriate therapies, many patients with that same diagnosis can live healthy, productive lives.
In the United States, there are approximately 250,000 people diagnosed with primary immunodeficiency disease and thousands more go undetected. These individuals often find it difficult to receive specialized health care, proper diagnosis and treatment. Individuals affected by primary immunodeficiency diseases also experience difficulties financing their health care, finding educational materials on the disease and locating others with whom to share their experiences.