Dercum's Disease always makes the Top 10 list of the most painful debilitating diseases known to man. But it's not well known because it is RARE!! Dercum's effects the Endocrine, Cardiovascular, Lymphatic and Neurological systems. It is genetic, etiology unknown, progressive and chronic without treatment or cure at this time. We want to increase awareness and make new discoveries!
Join or Sponsor our DASH 4 DERCUM's TEAM!
Help us raise vital funding to support patients & research for this rare disease.
What is a Virtual Dash and How Does it Work?
The Virtual 5K Dash will be held anytime between Saturday, March 19 through Sunday, March 27, 2016.
Supporters from all over the world will run/walk/swim/bike or roll the 5K or 3.1 miles to support the RARE Community.
Since it's VIRUTAL team members have the flexibility to participate wherever & whenever is most convenient as long as you Dash anytime between March 19th-27th!
Once you REGISTER, you will receive a dash packet. Included in the packet will be:
· Dash T-Shirt (must register by 3/2/15 to receive t-shirt)
· Dash Bib & Safety Pins
· Medal (to the first 1,000 who register)
· Blue Denim Genes Ribbon to wear on your shirt
DENIM DASH 2016 NET PROCEEDS:
Net proceeds from both the Virtual Denim Dash 5k, and the Local Dash (held at Global Genes Headquarters in California), will go directly back to the Rare Disease Community through Global Genes' RARE Patient Impact Grant.
That's what makes this Dash so different from others, the funds WE raise go directly into a program that positively impacts the rare community!
So are you with me? Join my team and get the word out. Click REGISTER to the right of this blurb.
TIPS AND IDEAS FOR YOUR VIRTUAL DASH:
Use different apps like Google Maps, Map My Run, Nike Running, etc., to determine a 3.1 mile route near you to bike, hike, row, paddle, swim, roller blade, cross country ski or whatever you like!
It’s up to you how but with whom will you DASH? You can do it alone, but it's always better with friends - ask them to REGISTER and join you!
Be creative, have a blast and share your 5k DASH with your friends, family, and other members of the Rare Disease Community through Facebook, Twitter, and Instagram by using #Dasher2016!
Can’t DASH 3.1 miles in one day? No problem! You can take your time and complete the 5K during the week. All you have to do is REGISTER!
If you're a true couch potato, then consider clicking the DONATION button to sponsor a member of the team!
My team goal is $1000. So ask everyone and anyone. They can sponsor any team member. Once you REGISTER you can create your own page for them to donate too.
They can donate per mile or to donate a flat amount for the total 5k.
Keep in mind there’s no set amount for sponsorship, so your friends and family can sponsor you at any level that’s feasible for them. You can also choose to pay more than the registration fee as an extra donation!
Thank you in advance for joining us in this incredible opportunity to raise awareness for DERCUM's and supporting the Rare Disease Community as a whole through raising funds for Global Genes' RARE Patient Impact Grant.
Can't wait to see your DASH - - - - - - #Dasher2016