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Susan Freed

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Jamie
Jamie SAYS:
Hi Susan, I know you already…
Hi Susan,
I know you already donated to Lisa and I want you to know that I really appreciate you donating extra to me! Every dollar counts! All the research and treatments have been funded 100 percent by donations. The research companies won't tackle something that is rare and brings them no money. So far, the first 6 month trial that Will is in has been promising. They saw improvements across the board for all the kids, regardless of age and amount of meds given. Now Will is moved on to phase 2 which will be two years. So far the treatments are going as planned and on track with the animal trials. In those trials the animals went on to create their own enzymes and live a full life!
Hope to see you in November! And to be honest I am flat out crazy not just a crazy Ironman.

1 year ago
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Susan Freed
Pomona, CA United States
CROWDRISING SINCE: Mar 10, 2015
Stuff About Me:
The person who created this page is probably preparing something riveting to post about everything they're doing to give back. We recommend you sit at your computer and hit refresh over and over until their story goes live. You should also scroll down and see if they have a fundraiser going so you can support 'em.

Susan
Freed

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Susan Freed's Fundraisers

I'm working on creating my first super compelling Fundraiser so please keep hitting refresh over and over until my first Fundraiser shows up. Or just wait for me to email you about it.