Suzanne Puckett- Struck down/ SecondaryAdrenal Insufficiency
Organized by: Snoopy Puckett
Snoopy Puckett via Crowdrise
June 24, 2014
I am very ill. My Adrenal Insufficiency causes me severe fatigue. It has been very hard to hold a job because of my low energy level. I really want to work and get better.
As it stands right now, I live on steroids to just stay alive. There is no real quality of life in living this way, though. I am trying to get up to Cleveland, Ohio to the Cleveland Clinic so that I can get a medical device that would help me to live a better life and actually be able to work in the field that I studied so hard for. I am a Certified EKG and Phlebotomy Technician. I was at the top of my class with both and graduated as such! I had straight A's in both certifications.
My passion is the heart, really. I would like to pursue the medical field pertaining to the heart even further than just being able to perform simple non-invasive EKG's. I would be able to do this if I can pay my current bills in Cincinnati, Ohio, and also go up to Cleveland and get the ball rolling with installing a cortisol pump. I put 3,000.00 up there as the amount b/c I am simply estimating. A pump costs a lot to buy. I can buy a used insulin pump off of craiglist I have heard for about $200.00. I am a bit scared of a used pump, but if I have to I will. I cannot even afford the used pump as it stands right now, though, and insurance will not cover it.
So, I am turning to the public for help. I am embarrassed and humiliated, but my will to survive is over- riding that at this time.
I just want to live and be able to be here as a good example for my two young adult children. I still need to be here on this earth. I still have people to help...family, friends, and yes even strangers. I have always enjoyed helping people. I want to be able to continue to do these things.
Adrenal crisis basically goes like this if unmedicated: Crisis- coma- death. I want to live!
I was diagnosed in 2010 with Secondary Adrenal Insufficiency. It has been a long four years of me struggling to stay afloat. The doctors in Cincinnati, Ohio (where I live), do not seem to care about my quality of life at all. They threw me on oral steroids(hydrocortisone), and pretty much have left it at that. It is such a rare disease that a lot of doctors are perplexed at how to imporove their patient's quality of life, I think. I am not accepting this for myself any longer, no matter the reason.
I can barely help others anymore because this illness always causes me such fatigue that I end up having to lay down or I may go into what is called Adrenal crisis. I went into crisis many times in the summer of 2012. I basically lived at the hospital because of it. All of these hospitalizations have also interrupted my career many times, forcing me to start from scratch once again with other jobs.
This is what I have, right here:
I need some help funding this so that I can actually recover, pay it forward and do some good, when I feel better. The cortisol pump and the help from Cleveland Clinic would be instrumental in aiding me to have a more energy filled quality of life. I would be actually able to hold down a job and keep it!
I am in danger of my electric being shut off and being evicted from my home!